Myotonic Dystrophy Support Group

Find out more

Charity details

Registered address
19-21 Main Road,Gedling

0115 987 5869

Email us

Visit our website

Charity number


To offer assistance, support and information to those people affected by Myotonic Dystrophy, their carers and families.

Myotonic Dystrophy support group is a registered charity, founded in 1989, run by volunteers and dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy. We have a central helpline and a network of regional contacts throughout the United Kingdom, as well as extensive links abroad. We are supported by professional specialist advisers, including in the fields of genetics, neurology, anaesthetics, research and rehabilitation. 

Support us

If you'd like to support Myotonic Dystrophy Support Group just click the links below:

Start fundraising Make a donation Make a monthly donation Donate your stuff