Lymphangiomatosis and Gorham's Disease Alliance - UK

Charity details

Registered address
6 North Deeside Road,
Peterculter,Aberdeenshire
AB14 0QQ

Phone
01224 735038

Email us

Visit our website

Charity number
SC043165

Aims and Achievement

Aims and Achievement

Aims

  • Promote public awareness of the needs of people affected by lymphangiomatosis and Gorham's disease and to promote supportive services that could benefit such people.
  • Support research into causes and treatment of lymphangiomatosis and Gorham's disease to advance knowledge about the condition.

Objectives

  • Promote literature on lymphangiomatosis and Gorham's disease for public distribution to relevant locations.
  • Promote supportive services benefitting sufferers by:
  • Working with the LGDA to further establish patient support.
  • Referring individuals who make contact with LGDA to such existing support.
  • Support research into causes and treatment of lymphangiomatosis and Gorham's disease by providing grants to medical research bodies.

Achievements

To date we have funded:

  • International Patient and Medical Conference on Lymphangiomatosis and Gorham's Disease
  • Part-funded the hire of a Research Assistant at La Paz Hospital, Madrid
  • Intial funding for a genetic research project at Great Ormond Street in London

No individual benefits from the money that is raised. All money stays within the Trust until a suitable application is received.

Support us

If you'd like to support Lymphangiomatosis and Gorham's Disease Alliance - UK just click the links below:

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