Norrie Disease Foundation

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Norrie Disease Foundation,Po Box 12476


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Imagine a world without sight.

Now imagine it without sound too.

This is the reality facing children, young people and adults with Norrie disease, a rare genetic condition. There is no cure.

You can help the Norrie Disease Foundation fund research and provide peer support services that could completely change the lives of those living with the condition.

The Norrie Disease Foundation provides support to families in the UK affected by Norrie disease.

Norrie disease is an incurable rare genetic condition causing mainly boys to be born blind and develop progressive hearing loss.

Our aims are to:

  • CREATE a brighter and better supported future for the Norrie community;
  • STRENGTHEN the Norrie Network; and
  • Proactively ENGAGE with the medical and research community

Why are we fundraising?

NDF is in partnership with Sparks and Great Ormond Street Hospital Children's Charity to take part in a national funding call to improve the treatment or quality of life of patients with Norrie disease, and particularly focusing on the Norrie disease progressive hearing loss. Click here for more information.

We need to raise £62,500 by February 2020 to ensure this important research can take place.

Please help us reach our target.

Fund our biannual Family Days, which provide peer support to the whole family affected by Norrie disease. Click here to read Ethan's account of attending a Family Day and why they are so important.

Thank you for your support!

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If you'd like to support Norrie Disease Foundation just click the links below: