Norrie Disease Foundation

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Charity details

Registered address
Norrie Disease Foundation,Po Box 12476


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The Norrie Disease Foundation provides support to families in the UK affected by Norrie disease.

Norrie disease is a rare genetic condition causing mainly boys to be born blind and develop progressive hearing loss.

Our aims are to:

  • CREATE a brighter and better supported future for the Norrie community;
  • STRENGTHEN the Norrie Network; and
  • Proactively ENGAGE with the medical and research community

We are fundraising to:

  • fund our Family Days, which provide peer support to the whole family affected by Norrie disease
  • fund research into a better understanding of Norrie disease with the ultimate aim of developing gene therapies

Thank you for your support!

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If you'd like to support Norrie Disease Foundation just click the links below: