NF2 BioSolutions UK

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Charity details

Registered address
10 Clos Ger Y Bryn,Tircoed Forest Village Penllergaer
Swansea,Abertawe
SA4 9JL

Phone
07771349518

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Charity number
1189618

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We are a registered UK charity that supports research to bring an end to the pain and suffering of children and adults with Neurofibromatosis Type 2 (NF2).

NF2 is very rare with under 2000 cases in the UK, it's a condition that causes tumours to grow in the brain and spine as well as elsewhere in the nervous system. As the tumours grow, they cause permenent and life changing damage.

Those affected have the condition from birth, NF2 is degenerative and a ticking time bomb.

We must slow or stop the onset of the condition.

Our purpose is to advance gene therapy and other preventative therapies for this rare disease to find a cure or solution.

We are a not for profit, patient led charity with all donations going directly to end NF2.  Our board of trustees includes the lead specialist for NF2 in the UK Professor Gareth Evans.

You can read more about our strategies on our website www.nf2biosolutions.org

We can't do it without you

Thank you

NF2 Fighters

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