SCN8A UK & Ireland

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Registered address
27 Wavertree Nook Road,
L15 7LE


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Dedicated to improving the lives of those with SCN8A and their families.


SCN8A is an extremely rare genetic disorder that causes a wide range of neurodevelopmental disorders, ranging from mild behaviour or movement disorders to severe developmental delay. 

 SCN8A is frequently characterised by multiple, frequent, treatment resistant epileptic seizures that can be prolonged and life threatening.

We are dedicated to helping through supporting those with SCN8A and their families, contributing to research and providing information.

Thank you so much for your donation. It means everything to us.



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