Who we are
Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest and most disabling genetic conditions known to medicine, causing bone to form in muscles and other connective tissues such as tendons and ligaments turning otherwise healthy people into human statues. A healthy mind locked inside a frozen body.
The condition is so rare (1 in 2,000,000) that little commercial interest exists in finding a cure so Oliver and his friends need your help. Please be a FOP Friend by supporting our charity.
Your donations are the difference between research continuing and it stopping completely.
Even the smallest donations make a big difference.