The Marfan Trust

The Marfan Trust was set up in 1988, to support medical research into the cause and prevention of Marfan syndrome. All funds raised are put towards various research studies and informing patients and medical staff about appropriate care. Our research work covers the whole of the United Kingdom and the Marfan Trust is the only charity in the UK that primarily supports research into Marfan syndrome.

If you would like us to promote your event on our website / Facebook or Twitter pages, or all three, please email us. Please send us your name, link to your Virgin Money Giving page, a short paragraph about what you are doing and why and a picture you would like us to use.

We will happily promote your event.

Thank you very much for your continued support.
The Marfan Trust