Max's Foundation CIO

Find out more

Charity details

Registered address
PO Box 70131,
London,London
N12 2EQ

Phone

Email us

Visit our website

Charity number
1164689

Homepage

At the beginning of January 2015, our gorgeous,smiling boy Max, passed away aged 10, suddenly and without warnng from an undetected heart condition known as hypertrophic cardiomyopathy.

The effect on us and everybody who knew him has been profound and heartbreaking and we decided that we wanted to help stop this happening to anybody else. We set up Max's Foundation to help  fund research into detecting heart conditions, such as cardiomyopathy, in preadolescent children and help provide support to the children and their families.  

 

We are currently in partnership with Great Ormond Street Hospital Children’s Charity. Together we are fundraising for the Centre for Inherited Cardiovascular Diseases at Great Ormond Street Hospital, the largest centre in the UK dedicated to the evaluation and management of the full range of inherited cardiac conditions in children.

So far we have funded a Research Nurse for the Department for a 3 year contract and bought some essential and desperately needed machinery including an Infrared spectroscopy machine, an ECG monitor and some ambulatory heart monitors.

The Nurse's work is far from over and we have now managed to get her contract extended for a further 2 years which we are now fundraising for, in addiition to further life-saving equipment.

 

We are also in partnership with Noah's Ark Children's Hospice and we are funding their sibling support programme for ages 14-18 for a 3 year period.

Please have a look at our website for further information.

Thank you so much for support and helping us to make a difference.

Support us

If you'd like to support Max's Foundation CIO just click the links below:

Gallery