MDS UK Patient Support Group Ltd

Charity details

Registered address
Haematology - Bessemer Wing,King's College Hospital
Denmark Hill,London
SE5 9RS

Phone
020 7733 7588

Email us

Visit our website

Charity number
1145214

Homepage

We provide a support and networking service for patients and families affected by the blood disorder Myelo-Dysplastic Syndromes (MDS) - a type of bone marrow failure.

As a support group we assist patients and families in a variety of ways:
* we organise patient information meetings with specialist speakers throughout the UK
* we run a website for patients and carers/families
* we campaign for MDS treatments through NICE and others advocacy and cancer and rare diseases awareness groups
* we distribute a newsletter and generally raise awareness of MDS
* we can help with referrals to MDS Centres of Excellence throughout the UK
We also offer a dedicated phone line for further advice for all affected by MDS - open Monday to Friday.
We aim to be the first port of call for MDS patients.

As a support group we assist patients and families in a variety of ways:

  • we organise patient information meetings with specialist speakers throughout the UK
  • we run a website for patients and carers/families
  • we campaign for MDS treatments through NICE and other advocacy, cancer and rare diseases awareness groups
  • we distribute a newsletter and generally raise awareness of MDS
  • we can help with referrals to MDS Centres of Excellence throughout the UK

We also offer a dedicated phone line for further advice for all affected by MDS, open office hours Monday to Friday: 020 7733 7558 

We aim to be the first port of call for MDS patients. Visit our website here: http://www.mdspatientsupport.org.uk/

We need your help to ensure all these services can be maintained now and in the future.  Please keep up the fundraising efforts and events. Please take a look at pictures of our past events in the Gallery, on the right. Use the links on the left to see our wonderful current and past fundraisers and exciting fundraisng events. 

If you would like to fundraise on behalf of MDS UK Patient Support Group please contact us using the info in Charity Details. Every single event makes a difference and raises important awareness of MDS.



Thank you so much for your support


Above: 2011 Windsor Walk - held in conjunction with the Aplastic Anaemia Trust (AAT) with our Chairman, Chief Executive, patients, families, friends.

Company Registration No. 7818480

Support us

If you'd like to support MDS UK Patient Support Group Ltd just click the links below: