The SMA Trust

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Registered address
Unit 3 Wychwood Court Cotswold Busines,
GL56 0JQ

01789 801155

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The SMA Trust is the only charity in the UK solely dedicated to funding research into Spinal Muscular Atrophy (SMA). SMA causes the body to lose the ability to send messages to muscles which then waste away. The SMA Trust contributes approximately 90% of private funding into SMA research in the UK and is dedicated to finding a cure. SMA facts SMA is currently incurable and often fatal. SMA is the Number 1 genetic killer of infants and toddlers. 50% of the most severely diagnosed cases result in death by the age of two. The other 50% of children, often with above average intelligence, live inside progressively malfunctioning bodies. 1 in every 40 people carries the defective gene that causes SMA. SMA is indiscriminate, knowing no social, gender, racial or ethnic boundaries This deadly disease results from a missing Survival Motor Neurone gene

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