https://uk.virginmoneygiving.com/Team/

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Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

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Team story

[p]In memory of Amali Rose-Brown, who died aged 4 in September, his family and friends (Team Amali) are completing physical challenges to raise money for East Anglia Children's Hospices (EACH) and The Lily Foundation.[/p][p][b][u]Amali's story[/u][/b][/p][p]In May 2020 Amali was diagnosed with Leigh Syndrome, a mitochondrial disease caused by a rare genetic disorder ([url=https://www.thelilyfoundation.org.uk/get-informed/mitochondrial-disease/]find out more here[/url]). We knew that this condition was life-limiting but had expected that Amali would live with it for several years, hopefully into his teens; however, in September Amali's condition rapidly deteriorated and he died surrounded by his family at EACH's hospice The Nook on Tuesday 22nd September. [/p][p]Amali was a gentle little boy, very much loved by his family and friends. His dream was to be 'a schoolboy' and that dream came true in September when he managed to attend Catton Grove Primary for a total of eight days, before it became evident that he could not continue. He loved nature and was always growing things and collecting conkers and acorns. He loved to paint, he loved Christmas, he loved books, he loved his childminder, he loved anything orange, he loved chocolate. He adored his two brothers and enjoyed nothing better than making baby Billy laugh. He loved to travel and see other countries and could speak a little Swahili and Spanish. He was pragmatic when taking his various medicines every day and was incredibly brave when having one of his many scans and tests. He joked with his doctors and charmed his nurses, and he gave the best cuddles in the world. [/p][p]Amali was also a kind, generous person. In 2020 as his condition worsened, his mobility deteriorated and he needed to use a walking frame to get around. In spite of this, Amali chose to take part in a distance challenge and walked to raise money for Forever Angels Baby Home in Mwanza, Tanzania. He always persevered even when things were really difficult - he learned to walk again after a particularly debilitating illness just after he turned four - and he never gave up. He was determined to ride a bicycle and tried his best to push the pedals down, and although his legs never were strong enough to achieve it, he tried hard every time. He almost always had a positive outlook even in hospital, and his motto was 'I can do this!' In that spirit of determination (and sheer bloody-mindedness), we, Amali's friends and family, are now challenging ourselves physically in order to raise money for EACH and The Lily Foundation.[/p][p][b][u]What will we do? [/u][/b][/p][p]On Saturday 29th May 2021, family and friends will be running, walking or cycling a distance of their choice in memory of Amali in order to raise funds for these two charities. We have more than 130 people taking part with participants from aged 1-78 years old. There are groups meeting (lockdown willing) in Kidderminster and Norwich to participate, as well as families and individuals taking part in locations around the UK and across the world. [/p][p][b][u]Why EACH?[/u][/b][/p][p]Amali spent his final days in one of EACH's hospices and the care and support from the incredible staff at EACH allowed me and his mama the space to spend every precious second with him and for him to be as comfortable as possible. EACH also allowed other family members to stay at the hospice, fed and looked after us all (including playing with Billy, our 8 month old) and since his death they have continued to support us as a family. We will be forever grateful for their kindness and support.[/p][p]EACH offer care and support for children and young people with life-threatening conditions and support families across Cambridgeshire, Essex, Norfolk and Suffolk. They offer families flexibility and control over where they receive their care and support, including where their child dies; at home, in hospital or at one of their three hospices. Find out more at [url=http://www.each.org.uk]www.each.org.uk[/url][/p][p]EACH are not government funded. All money donated will help them to support other families like our own through the adversity and challenges caused by the life-threatening conditions of their children.[/p][p][b][u]Why The Lily Foundation?[/u][/b][/p][p]The Lily Foundation is the UK's leading mitochondrial disease charity. Its mission is to improve the lives of people affected by mitochondrial diseases. They are working towards a future where mitochondrial diseases can be effectively treated or cured, and they provide essential ongoing support to patients, families and designated carers.[/p][p][b][u]Who are Team Amali?[/u][/b][/p][p][i]In Kidderminster:[/i][/p][p][b]Jake Rose-Brown[/b], Amali's dad, will be running half a marathon in Kidderminster.[/p][p][b]Billy Rose-Brown[/b], Amali's one-year-old brother, will be walking 1km in Kidderminster.[/p][p][b]Mpaji Rose-Brown[/b], Amali's eldest brother (age 13), will be running half a marathon in Kidderminster.[/p][p][b]Jack Topley[/b], family friend (age 13), will be running half a marathon in Kidderminster.[/p][p][b]Bennett Dash-Brown[/b], Amali's Uncle Ben Ben, will be running half a marathon in Kidderminster.[/p][p][b]Stephen Brown[/b], Amali's grandpa, will be running a marathon in Kidderminster.[/p][p][b]David Skinner[/b], family friend, will be running 10km in Kidderminster.[/p][p][b]Joseph Brown[/b], Amali's relative, will be running half a marathon in Kidderminster.[/p][p][b]Sarah Tamar[/b], Amali's granny, will be walking 10km in Kidderminster.[/p][p][b]Zoe and Oliver Brown[/b], Amali's auntie and cousin, will be walking in Kidderminster.[/p][p][b]Anthony and Margaret Trick[/b], Amali's relatives, will be walking 10km in Kidderminster. [/p][p][b]William and Isabel Brown[/b], Amali's uncle and cousin, will running 10km in Kidderminster.[/p][p][b]Emily Brown[/b], Amali's auntie, will be running 10km in Kidderminster.[/p][p][b]Lisette, Vinnie and Lacey Dash-Brown[/b], Amali's auntie and cousins, will be walking in Kidderminster.[/p][p][b]Mattias Tamar-Gill[/b], Amali's uncle, will be running half a marathon in Kidderminster.[/p][p][b]Meg Thompson[/b], Amali's auntie, will be running 10km in Kidderminster.[/p][p][b]Jude Farrar[/b], family friend, will be walking 10km in Kidderminster.[/p][p][b]Mike, Eleanor and Olivia Lever-Smith [/b](age 5), family friends, will be running and cycling in Kidderminster.[/p][p][b]Eleanor Bartlett[/b], Amali's relative, will be running 10km in Kidderminster.[/p][p][b]Kat, Jamie and Jack Cusack[/b] (age 2), family friends, will be walking 1 mile in Kidderminster.[/p][p][b]Simon Harrison[/b], family friend, will be running 10km in Wyre Forest.[/p][p][i]In Norwich & Norfolk:[/i][/p][p][b]John Rose (Babu), Georgina Rose and John Pring[/b], Amali's grandfather, auntie and uncle, will be cycling 8 miles in Norfolk.[/p][p][b]Chloe Manka-Hunter and family[/b], family friends, will be completing a challenge in Norwich.[/p][p][b]Heidi Lanchbury, Melanie James & Felicity James[/b] (age 5), family friends, will be walking 15 miles along the Norfolk coast.[/p][p][b]Tom Anstiss [/b]will be running a half marathon in Norwich.[/p][p][b]Charlie Bircher[/b], family friend, will be running a marathon in Norwich.[/p][p][b]Jeanette Baxter & Kate Lee[/b], family friends, will be running 10km in Norwich.[/p][p][b]Harvey Evans[/b], family friend (age 13), will be running 11km in Norwich.[/p][p][b]Anne Sykes[/b], family friend, will be walking 40 miles along the Norfolk coast.[/p][p][b]Catton Grove Primary School[/b], Amali's school, will be completing their own fundraising challenge.[/p][p][b]Sam Morrison, Shirin Syed, Tracy Groom, Sally Avery, Hilary Bedder, Freya Avery, Abbie Watson & Alison,[/b] lovely staff from Treehouse Children's & Family Centre (Amali's nursery), will be walking the Norfolk Coastal Path.[/p][p][b]Sheila & Andy Murray and their ten-year old[/b], family friends, will be walking 10km from Ludham to Catfield and back.[/p][p][b]Jodey Simmonds & Thalia [/b](age 5), family friends, will be completing 10km in Norfolk.[/p][p][b]Sam Yates[/b], of Norwich RacingTeam, will be cycling 100 miles in one day in Norfolk.[/p][p][b]Laura van Ree & Zoe[/b] (age 5), family friends, will be cycling the 26 miles of Marriots Way, Norfolk.[/p][p][b]Dian and small people[/b], Amali's much adored childminding group, will be doing as many laps of the park as they can in Norwich. [/p][p][b]Melanie Pleasant[/b], Amali's relation, will be cycling 50 miles in Norfolk.[/p][p][b]Claire Wood[/b], family friend, will be running 5km in Eaton Park, Norwich.[/p][p][i]From Avenue Junior School in Norwich: [/i][/p][p][b]Andrew Webb, Emily Bacon, Duncan Taylor, Mike Hooper, Maryam Sabbar, Rob Reynolds, Nick Thornton, Dan Lowe & Jennie Woodhead, [/b]family friends from Avenue Junior School, will be running half a marathon in Norwich.[/p][p][b]Nikki Teasdale, Sam Margetson and baby Emily[/b], family friends from Avenue Junior School, will be completing 5km in Norwich.[/p][p][b]Debbie, Julian & Dan Dismore[/b], family friends from Avenue Junior School, will be completing a challenge in Norwich.[/p][p][b]Farah Rehman[/b], family friend from Avenue Junior School, will be walking 100km in 10 days in Norfolk.[/p][p][b]Maygen Heald, Amanda Bailey, Silvia Ferretti, Elliott Thorne & Tracey Goodson[/b] family friends from Avenue Junior School, will be running 10km in Norwich.[/p][p][b]Rhys Peterson, Jocelyn Read, Baiba Zivtins, Vaishali Waje &[/b] [b]Jane and Ava Carnihan[/b], family friends from Avenue Junior School, will be running 5km in Norwich.[/p][p][b]Mr & Mrs Griffiths[/b], family friends from Avenue Junior School, will be walking from sunrise to sunset in North Norfolk.[/p][p][b]Saeedeh Aryan & Sadegh Faghih[/b], family friends from Avenue Junior School, will be walking 5km in Norwich.[/p][p][b]Nania Poulson[/b], family friend from Avenue Junior School, will be running 500km in the build up to the day.[/p][p][b]Lisa Crossman & Oliver Bevan[/b], family friends from Avenue Junior School, will be running 5km in Norwich.[/p][p][b]Poppy Bevan[/b], pupil at Avenue Junior School, will be walking 90km (the equivalent to the length of the Hadrian's Wall) in Norfolk.[/p][p][b]Lauren Pereira[/b], family friend from Avenue Junior School, will be walking 10km with her dog Ralph in Holkham.[/p][p]Around the UK:[/p][p][b]The Hathaways[/b], family friends, will be completing a challenge in Derby.[/p][p][b]Dionne Rose[/b], Amali's relative, will be running 10km in Brighton. [/p][p][b]Marisa Winzar and her family & friends, [/b]family friends, will be walking 10km in Brightlingsea.[/p][p][b]Emma Parker[/b], family friend, will be running 10km in Newbury.[/p][p][b]Adam & Ben Woodhams [/b](age 10), family friends, will run a half marathon in Hertfordshire.[/p][p][b]Henry Vincent[/b], family friend, will be running a half marathon in Guildford.[/p][p][b]Juliette Vincent[/b], family friend, will be running 5km in Guildford.[/p][p][b]Isla & Leo Vincent[/b], family friends (age 7 & 4), will be running 1 mile in Guildford.[/p][p][b]Martin & Michelle Hammond[/b], family friends, will be running a half marathon in London.[/p][p][b]Julie Edwards[/b], family friend, will be walking 10 miles.[/p][p][b]Carol Newman & Jesca[/b] (age 13), family friend, will be cycling in Dordon.[/p][p][b]The Wolstenholmes[/b], family friends, will be walking in Herefordshire.[/p][p][b]The Twelftrees including Samuel and Alex[/b] (age 10), family friends, will be cycling 15 miles in Thame.[/p][p][b]Zoe Dixon[/b], family friend, will be cycling 26 miles.[/p][p][b]Nina Booker and Maddie Maginnis[/b], family friends, will be running 5km in Horsham, England.[/p][p][b]Ahu Güray[/b], family friend, will be walking 30,000 steps in Epsom, England.[/p][p][b]Josie Polmeer[/b], family friend, will be walking 100km in Essex or Cambridge, England.[/p][p][b]Jackie & Maddy Jones[/b], Amali's relatives, will be running half a marathon in Suffolk, England.[/p][p][b]Julie Brockway,[/b] family friend, will be cycling 12km in Dorset, England.[/p][p][b]The Sanders family[/b], family friends, will be walking 10km in Kent, England.[/p][p][b]Tim & Kate Bartlett[/b], Amali's relatives, will be walking or cycling 10km in Northamptonshire, England.[/p][p][b]Alex Metha[/b], family friend, will be running 10km in Leeds.[/p][p][b]Susannah Bass, Luke & Sam[/b], family friends and ex-students, will be running 5km in Crawley, England.[/p][p][b]Sophie Desogus[/b], Amali's relative, will be running 20 miles in Birmingham, England.[/p][p][b]Louis Desogus[/b], Amali's relative, will be cycling 15km in Birmingham, England.[/p][p][b]Jonny Saunders[/b], family friend, will be swimming 3km in Bristol, England.[/p][p][b]Henry Mulhall, Jamie Hanratty & Guy Watts[/b], family friend and former players of London Spikers, will be playing in a volleyball marathon lasting 8 hours in London, England.[/p][p][b]Emily White[/b], family friend, will be walking 30,000 steps in London, England.[/p][p][b]Ivor Dickinson [/b](age 14), family friend, will be cutting all of his hair off in London, England.[/p][p][b]Layla & Taryn O'Brien[/b], Amali's relatives, will be baking cakes to order in their local area in Birmingham.[/p][p][b]Charlotte, Tilda[/b] (age 6) [b]and Nell Bailey[/b] (age 2), family friends, will between them run 15km in Brighton, England.[/p][p][i]Around the world:[/i][/p][p][b]Sarouche Razi[/b], family friend, will be swimming 5km in Canberra, Australia.[/p][p][b]David Thorley[/b], family friend, will be running half a marathon in Sydney, Australia.[/p][p][b]Joseph Gale[/b], family friend, will be running half a marathon in Kiev, Ukraine.[/p][p][b]Annie Waterston[/b], family friend, will be walking 20km in Vienna, Austria.[/p][p][b]Helen & Mary Bowen [/b](age 14), family friends, will be completing a musical challenge in Lomé, Togo.[/p][p][b]Chloe & Emma McEwan[/b], family friends, will be running a half marathon in Bangkok, Thailand.[/p][p][b]Melissa Valente[/b], family friend, will be walking 5km in Mwanza, Tanzania.[/p][p][b]Luke Smit[/b], family friend, will be cycling 300 miles in Virginia, USA.[/p][p][b]The Holm-Jensens including Viggo & Olaf [/b](age 14 & 11), family friends, will be cycling 33km from Copenhagen to Roskilde, Denmark.[/p][p][b]Sandy Dunne[/b], family friend, will be cycling The O'Keefe Rail Trail (48.3km) in Australia.[/p][p][b]Akram Mulji[/b], Amali's brother from another mother, will be running half a marathon in Johor, Malaysia.[/p][p][b]Phil Jackson[/b], family friend, will be running 10km in Hong Kong.[/p][p][b]Kieran Hennigan[/b], family friend, will be running 10km in Stockholm, Sweden.[/p][p][b]Kate, Nyika & Cielo Ling-Davies[/b], family friends, will be walking 10km in Marbella, Spain.[/p][p][b]Hywel Davies[/b], family friend,will be swimming 5km in Marbella, Spain.[/p][p][b]Sara James[/b], family friend and ex-student, will be walking 10km in Kampala, Uganda.[/p][p][b]Fay Weston & Shannon Thomson[/b], family friends will be walking 16km in 4km chunks in Mwanza, Tanzania. [/p][p][i]If you would like to join Team Amali and do your own challenge in order to fundraise, then please get in touch at teamamali2021@gmail.com. You could join people in either Kidderminster or Norwich (lockdown willing) on the 29th May to participate or you could take part in your own location. You are welcome to do any distance and to complete it in the manner of your choosing. Everyone is welcome![/i][/p][p]Thanks for all your support and best wishes. Please share this with your friends, family and colleagues.[/p][p]Regards,[/p][p]Jake Rose-Brown (Amali's dad)[/p]
Team Amali Challenge image 1
Team Amali Challenge image 2
Team Amali Challenge image 3
Team Amali Challenge image 4
Team Amali Challenge image 5

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Supporters


Jun 23, 2021

mama kafuku

So sorry to see this. Thinking of Rosie and Mpaji and all the lovely people they are supported by. Salama tu


Jun 22, 2021

Philippa Watt

£50.00

plus £12.50 Gift Aid


Jun 22, 2021

The Himsworths

Well done Charlie (sorry it’s so late!)

£26.00

plus £6.50 Gift Aid


Jun 22, 2021

Dot

£100.00

plus £25.00 Gift Aid


Jun 18, 2021

Ruwena sharpe

£10.00

plus £2.50 Gift Aid


Jun 17, 2021

The Hendersons


Jun 17, 2021

Anonymous

Much love xxx

£30.00


Jun 15, 2021

Anonymous

£10.00

plus £2.50 Gift Aid


Jun 14, 2021

Taylors

Love to all the family... what a great cause for a special little one. X


Jun 13, 2021

David Orla and Donovan x

£100.00

plus £25.00 Gift Aid

Jake Rose-Brown

Jake Rose-Brown

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