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Anthony Reyers

Keep our Worlds from Fading to Silence

Sell your unwanted stuff with Ziffit and support Anthony's fundraising effort.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]I don’t do this a lot, asking for donations from people. I don’t like doing it, and it makes me uncomfortable. But as the latest results point towards a slight decline in my hearing again and I become more aware of that other part of my disability, it is impossible to ignore the call from the only charity in the world that aims to stop the hearing loss that comes with Norrie, the rare genetic disorder I was born with. [/p][p]As many of you are aware, I am blind from birth, but that never stopped me for a minute from being the passionate young man I am now. In particular, the world of sounds around me has enabled me to do the things I do, and shaped me as a human being in ways never imaginable. No matter whether you know me as an adventurous traveler, a caring friend or an avid music lover, DJ and producer, you know that sounds are what I live and breathe for.[/p][p]It is that world of sounds that I had to stop taking for granted when I was 18. I learned that the rare genetic condition I was born with would not only cause blindness; it would also let my hearing slowly fade away, replacing it with loud constant screeching and ringing that would never stop. There are moments I lay in bed, and I wish silence was still an option. On other occasions, I curse at whatever genetic mistake turned down the volume of the high frequencies and made it so difficult to be social in loud environments. Doctors couldn’t tell me how fast I’d go deaf, just that roughly half of my hearing was already gone, and that the only thing I could do was learn to live with it. My condition was so rare that no research on it would be done, after all.[/p][p][br][/p][p]Now, this may be about to change. Several families who are faced with the same problem have united in the UK-based Norrie Disease Foundation. They are the first and only organization in the world that have managed to push forward concrete research on my condition. Currently, they are partnering up with the London Great Ormond Street Hospital to make research possible which will lead to a gene therapy cure for Norrie-caused hearing loss. However, this means that they also have to collect part of the needed money for that, in this case £65,000 each year. This research is by far not only the last hope I have to save my own hearing, my passion for music and my way of life. Mostly, answering this call is the only thing I can do to help those who will come after me and save them from the struggles I am going through now.[/p][p] [/p][p]That is why I’m asking all of you who see this message for your much needed help. Every cent donated and every share of this campaign is appreciated from the depths of my heart and the hearts of everyone in our community. Thanks to you, we might still be able to hear the voices of our loved ones and enjoy the wonders of music in the future. Please make it happen. Please help us, and keep our worlds from fading to silence. ...[/p]

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Supporters

Feb 9, 2020

Roy Kunnen

£50.00

Jan 15, 2020

Polazzi Michael et Caroline

Polazzi Michael et Caroline

£39.00

Jan 13, 2020

Avaya Gives Back

Lions Club Kortenberg (Belgium)

£215.00

Jan 13, 2020

Avaya Gives Back

Lions Club Kortenberg (Belgium)

£215.00

Jan 8, 2020

Alain Reyers

Familly Reyers Boidin action

£1300.00

Jan 4, 2020

Anonymous

Familie Verstraete en Van Beversluys

£150.00

Jan 4, 2020

Daniel Valentin

Family Valentin

£100.00

Dec 25, 2019

Eddy Gilissen

£100.00

Dec 25, 2019

Anonymous

£2.00

Dec 20, 2019

Anonymous

Ik las je bericht via het persoverzicht van Thomas More hogeschool. Ik wil je graag steunen om het onderzoek vooruit te helpen en hopelijk kan jij er nog van genieten! we duimen!

£30.00