Charlotte Matthews

Charlotte Matthews

Duchenne Dash

Archie's March Link opens in a new window

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]When my sweet nephew Archie was diagnosed with Duchenne Muscular Dystrophy in August 2017, a month before his fourth birthday it turned our family's life upside down. For his parents, Beccy and Alex this time was excruciating as the world as they knew it came to an end and all their hopes and dreams for little Archie seemed to vanish.[/p][p]Duchenne is a rare and fatal genetic condition. Muscle wastage through childhood and adolescence eventually affects all the muscles in the body. Boys with DMD are often in a wheelchair by the time they hit their teens. By their late teens most lose the ability to move their arms and experience problems with breathing and with their hearts. In their twenties eating, dressing, and simply breathing becomes very difficult and it is unusual for someone with Duchenne to live beyond their thirties.[/p][p]However, instead of letting this disease define our family we have decided to join the fight to end it! We started this journey last year when myself, Aunty Libs & Uncle Ewan cycled to Paris in 24 hours for the Duchenne Dash. This year we are doing it again but with an even bigger team as Uncle James joins the fight. [/p][p]Duchenne UK is a lean, ambitious and highly focused. Its vision is clear: to fund and accelerate treatments and a cure for DMD, and to beat this disease in a decade. It is committed to saving THIS generation of boys with Duchenne. Duchenne UK are seeing positive results from the research they are funding, giving us huge hope for Archie. All money you donate goes straight to this cause. Please help us to fund research into treatment for this devastating condition. For more information go to: [url=https://www.duchenneuk.org/archiesmarch]https://www.duchenneuk.org/archiesmarch[/url].[/p][p]Here’s a video that tells you more: [url=https://youtu.be/e2uKGoWO0K4]https://youtu.be/e2uKGoWO0K4[/url][/p][p]With hope and thanks,[/p][p]Aunty Chug & Uncle James[/p]
Duchenne Dash image 1
Duchenne Dash image 2
Duchenne Dash image 3

Event

Duchenne Dash

Duchenne Dash

07 Jun 2019

Charity

Supporters


Jun 5, 2019

Amy

Great work!! Enjoy the ride :)

£10.00

plus £2.50 Gift Aid


Jun 1, 2019

Gemma Brierley-Rutter

Allez Auntie Libs and Auntie Charlie x

£10.00

plus £2.50 Gift Aid


May 14, 2019

Bruno Cozzo

Charlotte, The effort you are doing for your nephew and for the cause is truly beautiful. I do hope we have better news for Archie and your family in the future. Best, Bruno

£15.00


May 7, 2019

Hannah fitz

Well done you nailed it girl!

£15.00

plus £3.75 Gift Aid


May 7, 2019

Anonymous

£550.00

plus £137.50 Gift Aid


May 2, 2019

John White

£100.00

plus £25.00 Gift Aid


Apr 27, 2019

Mel

Good luck with the challenge. Sending all my love xxx

£10.00

plus £2.50 Gift Aid


Apr 18, 2019

Anonymous

£20.00

plus £5.00 Gift Aid


Apr 18, 2019

Anonymous

£10.00

plus £2.50 Gift Aid


Apr 18, 2019

Anonymous

£40.00

plus £10.00 Gift Aid

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