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Ash Smith

The Great North Run with Arran and Andrew

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p][b]Kray-James Congenital CMV story [/b][/p][p][b]Our lives turned upside down when our 20 week scan showed that Kray had bright bowels on his ultra sound, indicating a problem. We were then told that Shannon was being tested for an infection called CMV, 3 weeks later we got the results that we were dreading, Shannon had contracted Primary CMV something we had never heard of. An Amniocentesis was offered to confirm if the virus had passed to Kray but we declined as the risk factors were too high, we were then sent to have an MRI which showed Kray’s brain had been effected resulting in brain damage, and that his quality of life would be severely effected. We were given the option to end the pregnancy but there was no way we were giving up on our little boy. Preparations were made for his birth and it was a very anxious time. He was born 15[/b][b]th [/b][b]of February 2017 and spent 16 days in ICU, Kray was born with Microcephaly, Enlarged Liver, Jaundice, Blueberry muffin rash, Enlarged Spleen. Kray also needed daily Platelet Transfusions and he had a Low Immune system. For the first 6 months of Kray's life he was on a number of medications for each problem. Further problems include eye sight problems, hearing loss, development delay in all areas, Cerebral Palsy and he is also high risk for Epilepsy. The prognosis for Kray’s future means specialists cannot tell us if Kray will be able to walk or talk but for us giving up is not an option and we endeavour to do everything we can do to give him the best chances. Despite what life has thrown at Kray he always has a smile on his face and has achieved so much. Our Son has so much love to give and loves his cuddles and kisses from his dotting big brother Jesse-James, family and friends. He’s such a beautiful happy little boy and we wouldn’t change him for the world! [/b][/p][p] [/p][p][b]CMV[/b], or[b] Cytomegalovirus[/b], is a common virus that can infect people of all ages. Once[b] CMV[/b] is in a person’s body, it stays there for life. Most healthy adults and children who become infected will have no signs or symptoms and no long term effects from [b]CMV[/b]. It can however pose serious risks to unborn babies if a pregnant woman catches it for the first time. [b]Congenital CMV[/b] is when a baby has been infected before birth. It is one of the leading causes of hearing loss in children and one of the main causes of childhood disability. [b]CMV [/b]is the most common infection passed from mother to unborn baby that isn’t routinely screened for.[/p][p][b]The Great North Run. [/b][/p][p]We are doing the run to raise awareness of [b]CMV [/b]and give something back, we are 3 amateurs in training, myself Ash Smith (Krays daddy), Arran Bace (uncle/godfather) and Andrew Baldwin (Godfather). No donation is to small. 100% of donations will be going to [b]CMV[/b] action. Please help us to get the awareness out and donate/share as far as you possibly can. [b]Thank you for taking time to reading Kray-James’s story[/b] [b]we really appreciate your kindness.[/b][/p][p] [/p][p]For people that have read Krays story that would like to donate without social media. Please type ‘Virgin money giving’ into google. Then ‘Donations’ followed by searching ‘Ash Smith’ to find Krays page.[/p][p][b]Thank you[/b][/p]
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Supporters

Nov 9, 2019

Cathy Keating

Lovely to meet your family and such an incredible achievement running! Well done Love Cathy,David & Harry X

£50.00 plus £12.50 Gift Aid

Oct 20, 2019

Liz and Phil Taylor - GL1 Spin

Well done on your splendid effort for such a good cause

£20.00 plus £5.00 Gift Aid

Oct 20, 2019

Liz and Steve - GL1 Gym

£5.00 plus £1.25 Gift Aid

Oct 4, 2019

Huw from Snape

£10.00 plus £2.50 Gift Aid

Sep 30, 2019

David

Sep 18, 2019

Shalini

All the very best!

£15.00 plus £3.75 Gift Aid

Sep 16, 2019

Aunty Pat

Well done

£10.00

Sep 10, 2019

Neil Ackroyd - Western Thermal

£15.00 plus £3.75 Gift Aid

Sep 8, 2019

Chris and Lara

A well deserved charity, for such an amazing little fighter. Love from both of us. Xx

£50.00

Sep 7, 2019

Tina Claridge

£10.00 plus £2.50 Gift Aid