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Caroline Kingdon

M.E. Trust - tales from an armchair

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Total raised so far £0.00

Target £0.00

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My story

[p]Like many of you, in quarantine I have turned to reading for solace and distraction during these surrealistic days of suffering for so many.[/p][p]Tuesday May 12th is Myalgic Encephalomyelitis (ME) Awareness Day – sometimes called Chronic Fatigue, this is the disease that I have been researching with colleagues at the London School of Hygiene and Tropical Medicine for the last 7 years (of my 45 as a nurse). So, this coming Tuesday, on this important day, I am fundraising for the ME Trust and I look for your support![/p][p][b][u]At 8 am on ME Awareness Day (Tuesday, May 12th), I am going to start reading (out loud) – a marathon from an armchair in these lockdown times - and I will continue as long as my voice (and the tea) holds out.[/u][/b][/p][p]The M.E. Trust is a tiny charity with great muscle; what the Trust manages to do with a very small budget is truly amazing [url=https://www.metrust.org.uk/]https://www.metrust.org.uk[/url]. It seeks to provide accessible, expert and holistic medical care from a multidisciplinary team including a doctor, nurse and physio; augmented by others in the Trust team they also offer support to families, carers and friends. Like us all, they have been hugely hit by the pandemic, and their special nationwide walk to raise desperately needed funds has, of course, been cancelled. Help me help them to cope with this unexpected setback.[/p][p]Researching this disease has been one of the most challenging and rewarding experiences I have ever had. ME is a long-term, fluctuating, neurological condition; it affects up to 250,000 people in the UK, and the M.E. Trust looks after some of those who are most severely affected. People with ME experience severe, persistent fatigue after doing something that should not be tiring; even when they wake up after a long sleep, they feel exhausted. ME is a debilitating and complex illness, which has been greatly stigmatised, but which leads to those most severely affected [u]essentially living permanently in lockdown[/u]. ME robs people of their dreams, their relationships, their sense of worth and, often, their livelihood.[/p][p]I know that at this extraordinary time, many of you have pressures to give to charities you already support. If you feel that you are at your limit, I, of course understand. But bear in mind, I am offering to read your favourite verses, and inspiring you to leave your troubles behind. So even if it’s just the cost of your day’s coffee or the exorbitant train fare you’ve saved by not commuting today, every little coin is critical![/p][p]If you have a favourite poem or book from which I could read a much-loved extract, please let me know [u]before [/u]May 12th by responding to this email or logging a request alongside your donation. You can ask me to read a story for a child or grandchild, or something that is special to you or someone you love. I will make a list of what I hope to read by the evening before, and will be able to give you some idea of when I hope to read what; you will be able to check up on me by accessing a live stream on YouTube at [url=https://youtu.be/r88R9wv31pY]https://youtu.be/r88R9wv31pY[/url][/p][p]I hope that my number one supporter, Charles, will supply me with numerous cups of tea (and perhaps fewer glasses of wine at sunset!). I will also take some time to share the words of people with ME/CFS, who so often live a half-life in isolation - month upon month, year after year. [/p][p]This year is a special one, as May 12th also marks 200 years since Florence Nightingale was born; she probably had ME following Crimean fever and spent many years in bed. I will also read some short extracts from her writing, giving me pause to recall all the joy and heartache I have found as a nurse.[/p][p]Please support me in the venture and donate to the M.E. Trust at: [url=https://uk.virginmoneygiving.com/fundraiser-display/showROFundraiserPage?userUrl=CarolineKingdon&pageUrl=1]https://uk.virginmoneygiving.com/fundraiser-display/showROFundraiserPage?userUrl=CarolineKingdon&pageUrl=1[/url][/p][p]For an additional small donation, I can make and send you a recording of your request...[/p][p][br][/p]
M.E. Trust - tales from an armchair image 1

Share Caroline's story


Personal Challenge Date

12 May 2020


May 26, 2020


To Dearest Caroline Well Done. Such a Beautiful Story telling Voice, with Love as ever Andy and David

£15.00 plus £3.75 Gift Aid

May 18, 2020

Sue and Robin

Good reading! Happy to support.

£100.00 plus £25.00 Gift Aid

May 16, 2020


Well done Caroline!

£15.00 plus £3.75 Gift Aid

May 16, 2020

Tim and Gail

Brilliant - well done

£50.00 plus £12.50 Gift Aid

May 15, 2020

Meg Connolly

In honor of a friend.


May 15, 2020

David Jones

A great effort and a great cause!

£30.00 plus £7.50 Gift Aid

May 15, 2020

Jim and Jill

Well done. We are especially grateful for your efforts.

£50.00 plus £12.50 Gift Aid

May 15, 2020


To the work of the M.E.Trust

£20.00 plus £5.00 Gift Aid

May 14, 2020

Catherine John Naomi and Ella

Well done Caroline!

£15.00 plus £3.75 Gift Aid

May 13, 2020


£50.00 plus £12.50 Gift Aid