Charlie Alice Robbins

Charlie Alice Robbins

Duchenne Dash 2019

Archie's March Link opens in a new window

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]We found out in August 2016 that our nephew Archie had been diagnosed with Duchenne Muscular Dystrophy, a shocking and heart breaking diagnosis that turned the family upside down.[/p][p]Duchenne is a very rare, genetic life limiting disease which currently has no treatment or cure and will rob Archie of his mobility & steal him of his ability to live ‘normally’. Boys with DMD are often in a wheelchair in their early teens, lose the ability to use their arms by their 20s and basic tasks like eating, dressing and simply breathing become a struggle. It is rare for boys with the condition to live into their 30s.[/p][p]Beccy and Alex, Archie’s parents have struggled over the past 2 years and through the support of family, friends and Duchenne UK they have been able to lead as normal a life as possible.[/p][p]Alice and I had our twins boys 1 year ago and this really brought home for us the anguish that a diagnosis must bring with it. As such we are determined to support Beccy & Alex and we have committed to help raise as much money for Duchenne UK as possible.[/p][p]To start this fundraising we are taking part in the Duchenne Dash 2019. A 300 mile bike ride from London to Paris completed in 24 hours. Alex will also be cycling with his brother and Beccy’s other sisters Libby & Charlie along with their other halves coming along to support also.[/p][p]Once upon a time at school this may not have been as difficult as I know it is going to be. The last 10 years haven’t been my most active, just the thought of sitting on a bike saddle for 24 hours brings tears to my eyes. Alice will be showing just how strong she is completing this just 18 months after having our twins.[/p][p]Duchenne UK is a lean, ambitious and highly focused charity. Its vision is clear: to fund and accelerate treatments and find a cure for DMD to beat this disease in a decade. It is committed to saving THIS generation of boys with Duchenne. Duchenne UK are seeing positive results from the research they are funding, giving us huge hope for Archie. All money you donate goes straight to this cause. Please help us to fund research into treatment for this devastating condition.[/p][p][br][/p][p][b]Please[/b] have a look at the attached links and dig deep to support us in this challenge and the crucial work Duchenne UK are doing.[/p][p][br][/p][p]For more information go to: [/p][p][url=http://duchenneuk.org/]duchenneuk.org[/url] and video that tells you a little more: [url=https://youtu.be/e2uKGoWO0K4]YouTube[/url][/p][p][url=https://www.duchenneuk.org/appeal/archies-march]Archie’s March[/url][/p][p][url=https://www.instagram.com/worldsstrongestboys/]#WorldsStrongestBoys[/url][/p][p][br][/p][p][br][/p]
Duchenne Dash 2019 image 1
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Event

Duchenne Dash

Duchenne Dash

07 Jun 2019

Charity

Supporters


Jun 9, 2019

Craig Lisa Blake Carter

Stay strong team, incredible family, incredible little chap and incredible charity..... sending you all MASSIVE hugs 💪🏼💪🏼💪🏼

£100.00


Jun 6, 2019

Melissa and Martin

Wishing you the best of luck for tomorrow guys! Love Mel, Martin, Amber and Leo xxxx

£20.00

plus £5.00 Gift Aid


Jun 6, 2019

Becky and James Robbins

What an amazing Aunty and Uncle Archie has!! So proud of you guys - go and smash this race in aid of such an amazing little man and incredible cause. Look forward to catching up soon. Lots of love from us all xxx

£50.00

plus £12.50 Gift Aid


Jun 5, 2019

Ellie and Owain

Best of luck! I’m sure you will smash it!! Love Ellie and Owain

£30.00


Jun 3, 2019

Anonymous

Sending lots of love! Hope the sun shines for the ride and no flat tires! Love from Lizzie, Pete, Emily and Imminent Arrival xxx

£30.00

plus £7.50 Gift Aid


May 17, 2019

Nic Robbins

Massive good luck with this team! Such an amazing thing to do and for an amazing cause. Wishing you all the best for it and hoping to see you soon to hear all about it.

£50.00

plus £12.50 Gift Aid


May 16, 2019

Anonymous

Good luck guys!

£15.00


May 14, 2019

Ash and Paul

Bon voyage you fabulous pair! You’re already cycling legends in our eyes, but we know you’ll do fantastically xx

£50.00

plus £12.50 Gift Aid


May 12, 2019

Liz and Dave Long

Wishing you lots of luck for your challenge! xx

£25.00

plus £6.25 Gift Aid


May 9, 2019

Jen Dargue

Best of luck with the cycle! Great cause, and what a beautiful smile Archie has, he is shining with love xx

£30.00

plus £7.50 Gift Aid

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