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Charlotte Proud

Great Scottish Aquathlon 2018

Challenge complete

Fundraising for this challenge has ended so we're no longer accepting donations. Thanks to everyone who supported this challenge.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]I will be taking part in the Great Scottish Aquathlon, Loch Lomond, Scotland on 25th August 2018. This will be a massive challenge (800 metre swim followed by a 5k run) I have never done anything like this before so it would be great to have your support![/p][p]I have Osteogenesis Imperfecta Type 1 (a rare bone condition) which means I have had around 50 fractures, although this is just a guess as I have a high pain threshold (When I was 4, I fractured my arm, but nobody knew as I didn’t complain of any pain, it was only discovered on x-ray a few weeks later when I fractured the same arm in a different place)[/p][p]This is a genetic condition, has no cure and affects collagen in the body, which then affects the quality of bone, tendons and ligaments. October 2018 will hopefully mean that I have made it 4 years without any fractures at all (amazing for how clumsy I am!)[/p][p]My condition is estimated to affect 1 in 15,000 people in the UK, which in terms of the general population makes it very rare (I’ve met Doctors who haven’t heard of it)[/p][p]In Primary School, I was initially discouraged from taking part in Sport, as I don’t think anybody thought that I would be any good at it (and they were scared of any fractures) I managed to prove them wrong and by Year 6 I was Captain of the School Netball Team.[/p][p]Since taking up Running in around 2011, I’ve completed 11 half marathons and 3 full marathons (including London) [/p][p]I’m not really sure what will happen with my condition as I get older so I aim to make the most of everyday and live life to the full (inspired by my amazing best friend Nicholas, who sadly died from Leukemia aged 12) I know that he will inspire me on the day of my swim/run, that’s for sure.[/p][p]Joining in with literally anything has its downsides. Some of my more spectacular accidents include:[/p][p]Running around the living room (maybe about Aged 3/4) playing Ambulances (of all games!) slipped and fractured my leg.[/p][p]Running around a shoe shop in Lincolnshire, again aged about 3/4 (seems to be a lot for running involved!) Fell over and fractured my leg[/p][p]Falling off a zip wire (surprisingly no fracture!)[/p][p]Aged 9, messing around in the living room at Christmas, I was swinging between two armchairs and suddenly heard an almighty crack in my elbow. I think I just thought “it felt funny” I had a metal plate and pins put in, and spent Christmas Eve and part of Christmas Day in Newcastle General Hospital.[/p][p]Wearing roller skates and managing to fall down a step (I must have only been about 6!) Probably a fractured wrist/elbow.[/p][p]Getting over enthusiastic, playing Water Polo, diving for the ball and hitting my hand on the side of the pool instead. Its fair to say my finger was at a funny angle. I managed to calmly get out of the pool. I had it surgically pinned.[/p][p]Aged 14, playing Football and someone slide tackled me. I dislocated my ankle and crushed my fibula/fibula. I had to accept that Football wasn’t quite the right sport.[/p][p]First year of University. Walking across a Pub car park (I wasn’t even drunk!) slipped on the ice, fractured my wrist (surgery/external fixation) [/p][p]As many of you who know me, I’m always up for a challenge and I never like to be held back. After running the London Marathon, I decided that I needed a brand new challenge.[/p][p]I am raising money for an outstanding small charity called Findacure. I was asked to speak from a patient’s perspective at their rare disease showcase in Newcastle Upon Tyne. This was a brilliant/ life changing experience from the people I met and made me realise that I wasn’t alone in living with a rare condition.[/p][p]Their vision as a charity is a world in which all rare diseases have treatments – made together with patients, for patients.[/p][p]“Rare diseases are defined in the EU as conditions affecting less than 1 in 2000 people — though they come much rarer than this. Because of their small patient populations, rare diseases are often assumed to be unimportant. This leads to a lack of support for patients and families, neglect by the medical profession, and little ongoing research into treatments.”[/p][p]“Findacure is here to help. We empower rare disease patient groups through a series of training programmes, and encourage collaboration between rare disease stakeholders to advance research. “[/p][p]I would love your support (even if it’s a £1)[/p][p]Thanks :-) :-) :-)[/p][p][br][/p][p][br][/p][p][br][/p]
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Share Charlotte's story

Event

Personal Challenge Date

25 Aug 2018

Charity

Supporters

Sep 7, 2018

Anonymous

Well - such an achievement, I have to make it up to 600 pounds.

£2.00 plus £0.50 Gift Aid

Sep 4, 2018

Anonymous

£5.00 plus £1.25 Gift Aid

Sep 2, 2018

Daisy Lund

Well done Charlotte!! Sorry I was a bit late on this but so pleased you reached your target !

£10.00 plus £2.50 Gift Aid

Sep 1, 2018

Tilllyyf

Amazing job well done X

£5.00 plus £1.25 Gift Aid

Aug 31, 2018

Paul Gilbert

What a star! I think you did a brilliant job...so inspiring!

£5.00 plus £1.25 Gift Aid

Aug 29, 2018

Claire

Well done Charlotte! Definitely an achievement to be proud of.

£15.00 plus £3.75 Gift Aid

Aug 29, 2018

Meghan

Well done Charlotte x

£5.00 plus £1.25 Gift Aid

Aug 29, 2018

Anonymous

Well Done!!! Absolutely amazing what you've done and the charity your raising for!!! You're awesome!! Xx

£30.00 plus £7.50 Gift Aid

Aug 29, 2018

Anonymous

Well done. Uncle Michael and Lynn

£20.00 plus £5.00 Gift Aid

Aug 29, 2018

Em Blake

Well done Charlotte...amazing effort! Sorry I can’t sponsor you more....maybe see you at the swim next year xox

£10.00