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[p]Hi – thank you for taking the time to visit my page.[/p] [p][/p] [p]In April 2018 I will be running the Virgin London Marathon – which will be my first ever marathon. I’ve done a couple of half marathons before signing up for this and upon finishing my last one I thought – hey I’ve got a bit more left in the tank – hence signing up for the full distance. Previously I have been running purely for me but I feel now is the time to make my effort count and raise money for a charity close to my heart.[/p] [p][/p] [p]My nephew, Daniel, is 8 years old and suffers from a chronic heart condition called Hypertrophic Cardiomyopathy with obstruction (HOCM) for which there is no cure, only treatment. Daniel was diagnosed, only by chance, when he was 16 months old. When Daniel was just 4 years old his condition suddenly worsened and he underwent open heart surgery at Glasgow’s Children’s hospital. What should have been a 6 day hospital stay became 3 weeks, due to several life threatening complications following his surgery - one of which being a heart block resulting in Daniel being fitted with a pacemaker. Daniel also now needed to carry a defibrillator wherever he went.[/p] [p][/p] [p]Exactly one year later Daniel came to visit us for the Easter holidays and play with his cousins – Callum & Euan. The 3 of them were playing in our garden on the climbing frame when Daniel suffered a cardiac arrest and my sister and my wife performed CPR and used the defibrillator twice prior to paramedics and ambulance arriving. This undoubtedly saved his life. Daniel then spent 5 weeks in Birmingham’s Children Hospital recovering and was fitted with an internal defibrillator to protect against future cardiac arrests.[/p] [p][/p] [p]Daniel has had to adjust to life with a chronic heart condition and internal device, which hasn’t been easy for him. He has several sport and activity restrictions as a result, and can’t run around or keep up with his friends as much as he would like. He continues to have regular hospital appointments to check the stability of his condition. [/p] [p][/p] [p]Living with a chronic heart condition is difficult for all the family, and this is where specialist support and information from organisations such as Cardiomyopathy UK is invaluable. [/p] [p][/p] [p]While we live in hope that research will find a cure one day, whether this is in Daniel’s life time or not, in the meantime we can face each day with strength and positivity thanks to the amazing support available.[/p] [p][/p] [p]Please please please give generously to help the charity educate doctors and nurses to improve diagnosis and treatment as without the early diagnosis Daniel would no longer be with us.[/p] [p] [b]Thank you![/b][/p]