Chris Pitcher

Chris Pitcher

A Pitcher Marathon: two halves make a whole

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]On Sunday 7th October Cath and I will be running the London Royal Parks Half-Marathon to raise money for The Sohana Research Fund. The Fund was set up by friends of ours whose daughter, Sohana, suffers from Epidermolysis Bullosa (EB) which is a currently incurable genetic condition which causes the skin to blister and shear at the slightest friction.[/p] [p]We first found out about EB when our eldest daughter, Elisabeth, started school with Sohana’s twin sisters. Sohana is a happy, positive 10 year old despite suffering from this incredibly cruel condition. Her type of EB is progressive, life threatening and very painful. It causes children to gradually lose the skin over their bodies, leading to intense pain and deformity associated with scarring. Sohana copes with her condition with immense courage and a fierce determination to enjoy life to the full.[/p] [p]The Fund is working on behalf of DebRA, the UK registered charity for EB suffers, specifically to advance medical research into a treatment and ultimately a cure for EB. Recent medical advances have made this a [span=text-decoration: underline;]real[/span] possibility. The first Clinical trial funded by the Sohana Research Fund will start at Great Ormond Street Hospital later this year.  However, further funds are urgently needed in order to complete the research, which will also have benefits for other conditions such as burns.[/p] [p]Please give as generously as you can. [span=-webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469);]All donations to Debra through this page will be allocated to the Sohana Research Fund to advance the medical research that will hopefully make a real difference to Sohana and the lives of all families affected by EB.[/span][/p] [p]We realise awareness for EB needs to be raised so for further information about Sohana, RDEB and the research, please visit the new website www.sohanaresearchfund.org.[/p] [p]Sohana was also featured in the Sunday Times magazine in May 2012.  Here is the link to the article http://www.debra.org.uk/uploads/resources/Times_Miracle.pdf.[/p] [p]Thank you for any support you can offer,[/p] [p]Chris and Cath[/p]

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Supporters


Oct 31, 2012

James Wood

Stupidly late donation. Apologises. I was waiting to see if you made it! jx

£50.00

plus £12.50 Gift Aid


Oct 29, 2012

Robert Miller

Better late than never... well done and a great cause.

£50.00

plus £12.50 Gift Aid


Oct 23, 2012

Robin & Michelle

Well done Team Pitcher, a very respectable time too! Next target, the Pitcher double marathon?

£30.00

plus £7.50 Gift Aid


Oct 18, 2012

Anonymous

congrats Pitchers a top effort, look forward to hearing how your full marathon goes next time!

£20.00

plus £5.00 Gift Aid


Oct 16, 2012

Mukta & Nitin Kaul

I am sure you did really well for a very worthwhile cause!! Would love to hear all about it. Mukta x

£20.00

plus £5.00 Gift Aid


Oct 15, 2012

Anonymous

Well done!

£40.00

plus £10.00 Gift Aid


Oct 14, 2012

The Watson's

Impressive stuff Pitchers...well done

£50.00

plus £12.50 Gift Aid


Oct 11, 2012

The Slingsbys

Well done team Pitch and most impressive times

£50.00

plus £12.50 Gift Aid


Oct 10, 2012

Anonymous

Well done

£100.00

plus £25.00 Gift Aid


Oct 10, 2012

Luke Attfield

go Cath....survive pitch!!

£100.00

plus £25.00 Gift Aid

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