Chris Pitcher

Chris Pitcher

Two days, one hundred ks

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]We really appreciated the kind generosity of so many of you last year when we attempted the London Half Marathon. This year we have more than doubled the distance and this weekend Cath and I will be taking part in Race to the Stones, a 100k walk along the Ridgeway Path, to raise money for The Sohana Research Fund (SRF). Having done a couple of 50k training walks, the challenge this year will be completion rather than any specific time.[/p] [p]The SRF was set up by friends of ours whose daughter, Sohana, suffers from Epidermolysis Bullosa (EB) which is a currently incurable genetic condition which causes the skin to blister and shear at the slightest friction. Sohana’s type of EB is progressive, life threatening and very painful. It causes children to gradually lose the skin over their bodies, leading to intense pain and deformity associated with scarring.[/p] [p]We first found out about EB when our eldest daughter, Elisabeth, started school with Sohana’s twin sisters and have been supporting the SRF since.[/p] [p]The SRF is working on behalf of DebRA, the UK registered charity for EB suffers, specifically to advance medical research into a treatment and ultimately a cure for EB. Recent medical advances have made this a [span=text-decoration: underline;]real[/span] possibility. Earlier this year we attended an update from Professor John McGrath, the man in charge of the research, and they are now entering the clinical trials stage of a potential treatment. Exciting progress is being made but further funds are urgently needed to complete the research.[/p] [p]Please give as generously as you can. All donations go direct to the Sohana Research Fund to advance the medical research that will hopefully make a real difference to Sohana and the lives of all families affected by EB.[/p] [p]We realise awareness for EB needs to be raised so for further information about Sohana, RDEB and the research, please visit the new [url=http://www.sohanaresearchfund.org/]website[/url].[/p] [p]Thank you for any support you can offer,[/p] [p]Chris and Cath[/p]

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Supporters


Aug 3, 2013

GWJ

tough walk - well done. Love to Sohana

£50.00

plus £12.50 Gift Aid


Jul 30, 2013

Anonymous

£100.00

plus £25.00 Gift Aid


Jul 28, 2013

Anonymous

Well done Pitchers! An excellent 2 days work! Hope to see you soon.

£50.00

plus £12.50 Gift Aid


Jul 24, 2013

Bob & Greta

£25.00

plus £6.25 Gift Aid


Jul 23, 2013

Richard Uttley

Great effort team Pitcher!

£50.00

plus £12.50 Gift Aid


Jul 22, 2013

Anonymous

Nice one Pitch (& Mrs Pitch !)

£30.00

plus £7.50 Gift Aid


Jul 22, 2013

Adrian Hill

Very well done. I'm sure you would have been quicker in a real pub-crawl!!

£30.00

plus £7.50 Gift Aid


Jul 22, 2013

Anonymous

Nice work! I'm sure there were a few renditions of the Proclaimers ' 500 Miles' along the way...

£20.00

plus £5.00 Gift Aid


Jul 18, 2013

Anonymous

£100.00

plus £25.00 Gift Aid


Jul 18, 2013

Matt & Anna

Excellent work, well done

£50.00

plus £12.50 Gift Aid

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