Our site needs cookies

We need cookies to help you sign in, create a fundraising page and donate. If you want to fundraise or donate on our site, you will need to turn on cookies How to turn on cookies.

It looks like you are trying to access a charity account.

Please click here for the charity sign in page. If you are not trying to access a charity account, please contact us.

Profile

Claire Secker

Help me help the CSF Leak community

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]A [b]Cerebrospinal Fluid (CSF) leak[/b] is a serious and often incapacitating medical condition stemming from a tear or hole in the membrane that contains the fluid surrounding the spinal cord and brain. It can occur in the head or spine as result of trauma, surgery, an underlying disorder, or spontaneously.[/p][p]When fluid leaks out, pressure and fluid volume around the brain reduces (known as intracranial hypotension) which allows the brain to sag within the skull. As a result of this ‘brain sag’, sufferers often experience severe and unrelenting head pain, visual disturbances, hearing impairment, seizures and a wide range of other symptoms.[/p][p]My husband Russell spent several years with an undiagnosed CSF Leak. In late 2018, he became severely unwell, and developed frontotemporal dementia. He was sleeping 18 hours a day, battling bad headaches, falling, choking, and losing his sense of smell and taste.[/p][p]Luckily we were able to find a neurosurgeon who was able to successfully find and then repair his spinal leak. Since his recovery, we have both volunteered to support the CSF Leak Association, a registered charity working to raise awareness of CSF leaks, among patients, doctors and nurses.[/p][p]In April 2020, I will be proudly running the London Marathon to raise funds for the [b]CSF Leak Association[/b], so that they can continue to do fine work for sufferers, their carers and the broader medical community. Please consider donating to this very worthy cause. Russ and I and the CSF Leak community truly appreciate your generosity. [/p]

Share Claire's story

Other ways to support Claire's fundraising effort

Turn your unwanted stuff into donations

together withziffit.com logo

Earn free donations when you shop

together withkindred logo

Event

Personal Challenge Date

04 Oct 2020

Supporters

Apr 11, 2020

Sandra

All the best Claire and thank you!

£15.00 plus £3.75 Gift Aid

Mar 20, 2020

Susan and Andrew Sutherland

£25.00 plus £6.25 Gift Aid

Mar 2, 2020

Sue W

£20.00

Mar 1, 2020

Anonymous

£10.00 plus £2.50 Gift Aid

Mar 1, 2020

Linda Cunningham

Well done Claire. x

£30.00 plus £7.50 Gift Aid

Feb 28, 2020

Gill and Nick

Go for it Claire !

£30.00 plus £7.50 Gift Aid

Feb 22, 2020

Paul E

Keep up the good work!

£30.00 plus £7.50 Gift Aid

Feb 21, 2020

Mary Runnacles

Good Luck, Claire, we are in awe of you! With love from all the Runnacles

£25.00 plus £6.25 Gift Aid

Feb 21, 2020

Eleni

Never knew anything about this terrible illness until my friend Susan was diagnosed. Great cause. Well done

£5.00 plus £1.25 Gift Aid

Feb 20, 2020

Pete

I hope the run goes well Claire. We all know it's for a great cause.

£30.00 plus £7.50 Gift Aid