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Profile

Claire Secker

Help me help the CSF Leak community

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]A [b]Cerebrospinal Fluid (CSF) leak[/b] is a serious and often incapacitating medical condition stemming from a tear or hole in the membrane that contains the fluid surrounding the spinal cord and brain. It can occur in the head or spine as result of trauma, surgery, an underlying disorder, or spontaneously.[/p][p]When fluid leaks out, pressure and fluid volume around the brain reduces (known as intracranial hypotension) which allows the brain to sag within the skull. As a result of this ‘brain sag’, sufferers often experience severe and unrelenting head pain, visual disturbances, hearing impairment, seizures and a wide range of other symptoms.[/p][p]My husband Russell spent several years with an undiagnosed CSF Leak. In late 2018, he became severely unwell, and developed frontotemporal dementia. He was sleeping 18 hours a day, battling bad headaches, falling, choking, and losing his sense of smell and taste.[/p][p]Luckily we were able to find a neurosurgeon who was able to successfully find and then repair his spinal leak. Since his recovery, we have both volunteered to support the CSF Leak Association, a registered charity working to raise awareness of CSF leaks, among patients, doctors and nurses.[/p][p]In April 2020, I will be proudly running the London Marathon to raise funds for the [b]CSF Leak Association[/b], so that they can continue to do fine work for sufferers, their carers and the broader medical community. Please consider donating to this very worthy cause. Russ and I and the CSF Leak community truly appreciate your generosity. [/p]

Share Claire's story

Event

Personal Challenge Date

26 Apr 2020

Supporters

Jan 10, 2020

Jackie Stafford

I wish you luck with this worthy cause!

£50.00

Jan 10, 2020

Elizabeth Colvin

Proud to be a member of your very large fan club!

£50.00

Dec 2, 2019

Anonymous

Good luck Claire and thank you!

£50.00

Nov 28, 2019

Anonymous

Good luck Claire from CSF leaker!

£30.00 plus £7.50 Gift Aid

Nov 28, 2019

Kate Barnes

Good Luck Claire - an extremely worthy cause that deserves far more recognition & research. I hope your husband is now well

£30.00 plus £7.50 Gift Aid

Oct 21, 2019

Anonymous

£50.00

Oct 19, 2019

Kathy and Bruce Coleman

Great event, great cause! Best of luck, love to you and Russ!

£100.00

Oct 19, 2019

Cameron Gage

£30.00

Oct 18, 2019

Sue and Noel

Wishing Claire every success in the 2020 London Marathon and running for such a good cause. Xx

£50.00

Oct 17, 2019

Anonymous

Good luck Claire - sending you both our best wishes Colin & Pat

£30.00