Claire Wells

Claire Wells

Running the London Marathon for PSPA

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p][br][/p][p][b]"You just don't want to accept you're getting older" - 'Well-renowned' neurosurgeon[/b][/p][p][b]"Are you sure it's not all just in her head?" - Family 'friend'[/b][/p][p][b]"You're just being overly anxious" - Local GP[/b][/p][p][br][/p][p]The above is just a handful of comments my mum received over the course of the [b]10 years [/b]it took before she got diagnosed with [url=https://pspassociation.org.uk/information-and-support/what-is-cbd/][b]Corticobasal Degeneration[/b][/url][b], a rare neurological condition, [/b]in January of this year. [/p][p]The diagnosis was bittersweet. [/p][p][b]Bitter[/b] because as you may have guessed from the word 'degeneration' there's currently no cure for this [b]debilitating neurological condition [/b]that has taken Mum from walking stick/zimmerframe to wheelchair bound within the last 6 months. [/p][p]Prior to this we'd been given [b]hope[/b] that Mum's [b]numb, jerky foot and general imbalance[/b] may be the cause of a compressed spinal cord. We'd hoped that an operation would mend Mum, we'd forget this sorry business and book a hiking trip to Austria and make up for lost time.[/p][p]It's a sorry day when hope flies out of the window. [/p][p][b]Sweet [/b]because after 10 years of being disbelieved by health professionals we finally had a name for Mum's condition. A neurologist not only believed mum but was telling us that there was a charity dedicated to supporting us. [url=https://pspassociation.org.uk/][b]PSPA[/b][/url][b].[/b] [/p][p]Without the [url=https://pspassociation.org.uk/]PSPA[/url] we wouldn’t have been connected to our FANTASTIC neurological nurse specialist who has co-ordinated a circle of support for us from [b]occupational and physical therapies to emotional support. [/b][/p][p]Now I could write 100,000 more words on just how frustrating Mum's journey to final diagnosis was. I could type through the tears about how I have to watch my former schnapps drinking, mountain climbing, yodelling Mum with a contagious zest for life gradually deteriorate before my eyes BUT I need to tell you what I'm ultimately here to run and raise awareness for: [/p][p]1. The two rare neurodegenerative conditions that sit under the [url=https://pspassociation.org.uk/][b]PSPA[/b][/url] umbrella – namely [url=https://pspassociation.org.uk/information-and-support/what-is-cbd/][b]Corticobasal Degeneration (CBD)[/b][/url][b] [/b]but also[b] PSP.[/b][/p][p]2. The importance of [b]FIGHTING[/b] for your health. We [i]know[/i] our bodies and we [i]know[/i] when something isn’t quite right. As great as the NHS can be, there’s no harm in getting second, third, forth opinions.[/p][p][br][/p][p][u]Why donate? [/u][/p][p]The [url=https://pspassociation.org.uk/][b]PSPA[/b][/url] is the [b]only[/b] charity supporting people with this condition in the UK. It's a small charity which [b]isn't government funded[/b]. With your donation the [url=https://pspassociation.org.uk/]PSPA[/url] can [b]continue supporting people and their families battling the conditions[/b], [b]educating health professionals [/b]about these two rare neurological nightmares (that often get misdiagnosed for conditions such as Parkinsons, MS, spinal conditions) and [b]fund critical research[/b] which will, in time, find a cure.[/p][p]I also want to take this opportunity to say a heartfelt thanks to new and old friends. I don’t have any family other than my mum so the day to day has been tough both emotionally and physically. It’s also been utterly petrifying to know that one day I will be entirely alone in this world but to those of you who have shown me incredible kindness and encouragement, especially when we first received the diagnosis you’ll never know how truly thankful I am. With your support I no longer feel so alone. [/p][p]Love and thanks for all your donations. [/p][p]Claire xxx[/p][p]PS: Watch out for training updates (I’m not much of a running stats person so I PROMISE not to bore you to tears too much!) [/p][p]I’m also keen to open up my doors to the reality of my life as a carer and my mum's as a person living with CBD through video, photos and blog posts. I have some smaller side fundraising events up my sleeve too! [/p]
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Supporters


May 6, 2019

Nicky Byrne

Well done Claire! You’re an absolute inspiration! Love Nicky (Cath’s friend) x

£10.00

plus £2.50 Gift Aid


Apr 30, 2019

Bex

Well done, Claire. You are such an inspiration. Xx

£40.00

plus £10.00 Gift Aid


Apr 29, 2019

Anna

Amazing Claire! Well done - you are an inspiration.

£10.00

plus £2.50 Gift Aid


Apr 29, 2019

Jayne

Well done Claire. Amazing effort.

£10.00

plus £2.50 Gift Aid


Apr 28, 2019

Steph P

Massive massive congratulations for completing the marathon. Huge amounts of love being sent your way.

£16.00

plus £4.00 Gift Aid


Apr 28, 2019

Liz Fryer

Good luck today Claire xx.


Apr 28, 2019

Andrew

£30.00

plus £7.50 Gift Aid


Apr 28, 2019

Ian

best of luck Claire ! x

£15.00


Apr 28, 2019

Karen Burman

Good luck Claire. Your mum must be so proud of you. I will be watching you in the marathon later today with Kim and Dan.

£30.00

plus £7.50 Gift Aid


Apr 27, 2019

Jenny and Steve

You are an inspiration and I am so proud of you. We will be waiting to cheer you on. Love you. Love Jenny and Steve xxx

£50.00

plus £12.50 Gift Aid

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