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Skydiving for OUCH

2 team members

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Team story

[p]We are raising money for the charity OUCH as this is a charity close us both. OUCH stands for Organisation of Understanding Cluster Headaches and this is a condition. [/p][p]OUCH help raise general awareness of Cluster Headaches and offer support and guidance to sufferers and their families. Although estimated to be around the same number of cluster headache sufferers in the UK as there are sufferers of MS, hardly anyone has heard of our condition and most people afflicted with this devastating disease are struggling on alone and isolated with their pain. (OUCH website)[/p][p]Cluster headaches begin quickly and without warning. The pain is very severe and is often described as a sharp, burning or piercing sensation on 1 side of the head. It's often felt around the eye, temple and sometimes face. It tends to occur on the same side for each attack. People often feel restless and agitated during an attack because the pain is so intense, and they may react by rocking, pacing or banging their head against the wall. The exact cause of cluster headaches is not clear, but they have been linked to activity in part of the brain called the hypothalamus. Cluster headaches are not life threatening, but they can cause severe pain and significantly affect your quality of life. Living with cluster headaches can be very difficult. (NHS)[/p][p][/p][p]Sandie's Story[/p][p]Having suffered with headache and migraine the majority of my teens, I had my first CH attack at age 27. I'd never felt pain like it and honestly thought I was dying, for over an hour I rocked and hit my head then, suddenly, it stopped as quickly as it had started..move on another 18 years and I had my next attack, this took me to A&E where I was diagnosed with Cluster Headaches and was referred to a neurologist who then diagnosed chronic Migraine and Chronic Cluster Headaches, over the course of the last four nearly five years I have had no break from pain and have found to be medication resistant. It's only because of OUCH that I can share my story and help to raise awareness for others in my situation. Because of their invaluable help and support I'm raising money by doing a skydive for my 50th birthday, if I can survive a cluster attack, I can survive falling out of a plane so please help in my quest to raise at least £500 for a worthy charity which is ran by sufferers for fellow suffers because without them, many would not be here today.[/p][p][/p][p]Cathal's story[/p][p]Pre-diagnosis (2014)I thought I just had a 'normal' headache, I didn’t really suffer from these normally. At first I thought it could be migraine as I had never experienced these before. I had heard of people laying in a dark room and sometimes sleeping it off. Even though I tried this it didn't make any difference and I was unable to lay still.[/p][p]I had went to the GP, numerous times, and I have to admit I did use Dr Google and came across Cluster Headaches. When I mentioned this to the GP he advised we would have to wait until the next bout before we could determine if it was or not, even though I mentioned all the times it had happened. I was refused an appointment with a Neurologist because the waiting time was too long. I was given co-codamol and lots of other medication throughout the years as pain relief, which has no effect. After having an attack at work I phoned NHS 247 and was given an out of hours appointment that day. When I saw the GP he had previously treated with someone with Cluster Headaches and started asking questions about my treatment and medication. At this point I was hopeful. I was advised to speak to my own GP for further medication and a neurology referral. My GP had refused to prescribe me the injections used to combat an attack purely because of the cost, as they were 3 x more than the tablets. Unfortunately the tablets take too long to work which is of no use. I eventually got a prescription for the injections but only for a limited amount. I eventually moved GP and from the start I have been fully supported throughout. I have injections when I need them, medication and I also got a Neurologist appointment. The average length of time it takes from the start of Cluster Headaches and receiving proper treatment and seeing a Neurologist is around 5 years. For me I was lucky enough to be seen after 2 years. Many people go years without the correct treatment and fobbed of with over the counter painkillers and it’s very difficult to explain that you are in an attack or a headache without people realising the effect of the attack or pain. [/p][p][/p][p]Cluster Headaches are also known as Suicide Headaches because of the effect it has on the quality of life.[/p][p] On average 7 people a year, in the UK alone, take their life because of the condition. So far this year, 6 people have ended their life. [/p][p][/p][p][/p]

Share their story

Event

Personal Challenge Date

01 Jul 2021

Charity

Supporters

Mar 5, 2020

Anonymous

Thank you for doing this... I feel your pain 😩

£5.00

Jan 15, 2020

Alan Connor

Good luck!

£10.00 plus £2.50 Gift Aid

Dec 26, 2019

Terry Shiettani

Good luck guys .... enjoy the flight!

£25.00

Nov 28, 2019

Kim Stevenson

£10.00 plus £2.50 Gift Aid

Nov 28, 2019

Anonymous

£1.00 plus £0.25 Gift Aid

Cathal Mooney

Cathal Mooney

Sandie Fox

Sandie Fox