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www.thedaisygarland.org.uk

4 team members

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Team story

[p][b]What?[/b][/p][p]4 Endurance Events - 160 miles - 13000 metres of ascent - 13000 metres of descent[/p][p]The Hardmoors 55 - Helmsley to Guisborough - March[/p][p]What a start! As you may have seen on national and local media. The weather was a little challenging!! Unbelievable effort from David and Stephen to go fast enough to get through the final checkpoint before they had to shut the race down. Scott and I were stopped at the final CP in what was a brilliantly organised and totally fantastic event. Still buzzing and I didn't make the finish.[/p][p]The Liverpool Marathon - May 20th.[/p][p]Hot Hot Hot. When Mike's HR hit 180 and he had the shakes we decided to slow down from our 4:15-4:30 pace. With only 25km to go it was Battle on! And we did! 5 hour finish, but a finish all the same. [/p][p]The Ten Peaks - The highest 10 mountains in The Lakes in under 24 hours - June[/p][p]A few blisters apart it was all going swimmingly as we entered Honister having done most of the climbing and with only (?) 17 miles to go. A hot sweet tea usually lifts the spirits, but in this case lifted Guy's stomach contents. The race dropped considerably after that as trying to run on an empty stomach and with huge blisters isn't much fun. A stunning effort saw Guy force himself on to lead the final night time assault on Skiddaw as my legs gave up. It's a bit of a surreal experience finishing an event 22:30 hours after you start. Dead last on Peak 1 we finished 56/110. Get in!!![/p][p]The Lakes Sky Ultra - 4500 metres of ascent in 34 miles including some serious scrambling - July 14th.[/p][p][b]Why?[/b] [/p][p]Going live just after Rare Diseases Day 2018! Nick's son Sam has the genetic condition Tuberous Sclerosis Complex. This results in him having brain tumours, epilepsy, polycystic kidney disease, autism, learning delay amongst others! His epilepsy brought us into contact with The Daisy Garland. A small family and volunteer run charity that does an amazing job support those people with epilepsy. Seizures are a common effect of any number of medical conditions and their impact on peoples lives cannot be understated. The Daisy Garland helps by funding dieticians to run the ketogenic diet, a special diet that significantly reduces seizures and all the issues that they bring. One of Sam's friends went from having 100 seizures a day down to 20!! The diet also allows the removal of anti-seizure drug all of which have significant side effects. The NHS simply do not have enough dieticians to run for diet for all those that need it. The Daisy Garland also supply families with monitors to allow them to leave their children with confidence that they will know if and when they have a seizure. AND perhaps the most importantly, someone from The Daisy Garland is always there with a supportive phone call, post, card etc.[/p][p][b]Who?[/b][/p][p]The usual mix of friends and people I have never met who have helped over the years to raise money for and awareness of Rare Diseases.[/p][p]David Cropper - an ever present in everything have we done for Sam and the charities that support him. Joining me for the 55 and Ten Peaks.[/p][p]Guy Mackenzie - another long running member of the team who owes the Ten Peaks following a DNF in 2014.[/p][p]Mike Caughlin - Arriving late to join the midlife crisis of distance running Mike will be dragging me round The Liverpool Marathon.[/p][p]Scott - A stand out feature of the support we have received for Sam is that a lot of the people have never met him or me right up to the point they suffer horribly running a long way and raising loads of money for charity. Scott is yet another one of these amazing people and will be somewhere ahead of me on the 55.[/p][p]Stephen Robinson - An example of an equally stand out group of people. Those that say "Yes" when asked to run 70 miles for your son's charity! Leaving me from the start line of the 55.[/p]
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Share their story

Event

Personal Challenge Date

23 Jun 2018

Charity

The Daisy Garland

The Daisy Garland

Supporters

26-Jun-2018

Anonymous

£50.00 plus £12.50 Gift Aid

25-Jun-2018

John

Thanks for the lift and various useful bits of advice in the Lakes. It was great to me you and guy.

£20.00 plus £5.00 Gift Aid

24-Jun-2018

Darren Hickman

Well done for completing it Guy and the rest of your team...good luck with the recovery now 8-)

£10.00 plus £2.50 Gift Aid

24-Jun-2018

Team Ward back in the UK

Well done guys!

£31.28

23-Jun-2018

Anonymous

You are doing a great thing, Guys! Thinking of you in the heat! xx

£20.00 plus £5.00 Gift Aid

22-Jun-2018

D Warner

£30.00

21-Jun-2018

Khushy

£15.00 plus £3.75 Gift Aid

21-Jun-2018

Anonymous

Good luck

£10.00 plus £2.50 Gift Aid

20-Jun-2018

Mark Cage

Have a lovely day out. Say hello to Skiddaw for me.

£10.00 plus £2.50 Gift Aid

18-Jun-2018

Michelle

Good luck Guy!

£15.00 plus £3.75 Gift Aid

Nick Dale

Nick Dale

Stephen Robinson

Stephen Robinson

Mike Caughlin

Mike Caughlin

Guy McKenzie

Guy McKenzie