Our site needs cookies

We need cookies to help you sign in, create a fundraising page and donate. If you want to fundraise or donate on our site, you will need to turn on cookies How to turn on cookies.

It looks like you are trying to access a charity account.

Please click here for the charity sign in page. If you are not trying to access a charity account, please contact us.

Profile

David Bone

Duchenne Dash

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]Hi, thanks for visiting my page.[/p][p]In February 2016, our friends received the news that their son, Connor, a boy the same age as our daughter, was diagnosed with a form of Muscular Dystrophy called Duchenne. Duchenne attacks the muscles and in most cases mobility is lost by the age of 10. It will eventually attack the lungs and heart which will lead to shortened life expectancy. Unfortunately, today it has no cure. However, we are on a mission to #endduchenne by raising vital funds and awareness to accelerate finding a cure to save Connor and boys like him.[/p][p]Although affecting 1 in 3600 boys, Duchenne Muscular Dystrophy is classed as a rare disease. Around 100 boys are born with DMD in the UK every year. Worldwide, this is around 54 every single day. In total it affects 300,000 worldwide. Unlike most disorders, Duchenne occurs across all races and nationalities. There is currently NO effective treatment for the majority of those with Duchenne.......... [/p][p]There was something very touching when I heard this story. I count myself lucky every day and now I have chance to try and make a difference so over a period of six months I plan to take on at least three physical challenges to raise funds for this hugely worthwhile cause.[/p][p]My first challenge will be the Brighton Marathon in April. As many of you know, I have run a marathon before, but that won't make it any easier. Running 26.2 miles is a long way, and it's going to hurt...[/p][p]2 weeks later I will be doing the Sevenoaks Triathlon. One of the hardest local “sprint” distance events and on some very tired legs![/p][p]In June it is the MAIN EVENT. This year I will joining a team undertaking the Duchenne Dash, a gruelling bike ride from London to Paris in under 24 hours. A 250 mile bike ride with minimal sleep ending under the Eiffel Tower![/p][p]I really appreciate your support and through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to Duchenne UK. This charity will help families like Connor's with both research and support with their everyday life in the coming years. Help me make a difference.[/p][p]Thank you[/p]

Share David's story

Event

Duchenne Dash

Duchenne Dash

07 Jun 2019

Supporters

Jun 23, 2019

Anonymous

£25.00 plus £6.25 Gift Aid

Jun 11, 2019

Francesca

£15.00 plus £3.75 Gift Aid

Jun 10, 2019

Helena Chatfield

£15.00 plus £3.75 Gift Aid

Jun 10, 2019

Cabot Financial

Cabot Financial Match Donations

£750.00

Jun 7, 2019

Tim

Hour you don't get to many punctures!

Jun 7, 2019

Katie Pain

Best of luck Dave, massive challenge for a great cause. L-P was great fun over a few days, hope you manage to enjoy it a bit too!

£20.00 plus £5.00 Gift Aid

Jun 7, 2019

Jen Amner

£10.00 plus £2.50 Gift Aid

Jun 7, 2019

Malcolm jarrett

£15.00 plus £3.75 Gift Aid

Jun 6, 2019

Tom W

Good luck Dave, Tom, Loren & Kids

£15.00 plus £3.75 Gift Aid

May 20, 2019

A Greenway

Downhill all the way - should be a piece of cake! .... :) Bonne chance - hope you get some 1/2 decent weather!

£50.00 plus £12.50 Gift Aid