Dean Munro

Dean Munro

Monte's Cup

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]Monte Gray Noel Munro 5/4/2021 - 14/06/2021.[/p][p][br][/p][p]Our aim is to raise awareness and try to help find a cure for the cruel disease so other children and families don’t suffer like Monte did and we have. [/p][p][br][/p][p]Monte was a beautiful little boy who was loved by so many people all over the world. I could spend days talking to you about Monte and how amazing he was and how he impacted our lives but for now I will let you know how you can help.[/p][p][br][/p][p]After 6 weeks Monte was diagnosed with Myotubular Myopathy a disease (1 in 50,000) which has no cure (yet) and effects the muscles including him being able to breath alone. Monte had a very severe case, he spent his whole 10 weeks of life on a life support machine and never left the hospital, my baby didn’t even see sunlight. [/p][p][br][/p][p]After 10 weeks Monte died peacefully, with me and his mum right by his side. This was something that no human should ever experience. I want to make a change and I know Monte would too. He was a little warrior, the strongest boy I know who fought so hard till his very last day.[/p][p][br][/p][p]ALL money (‘Every penny of the money we raise for the Myotubular Trust will be spent on research as they raise money for the running costs of the charity separately’) raised will be going to the myotubula trust who have spent years helping families and trying to find a cure. If monte was a still born we would have never known about why he died, the fact he came to us is him telling us we need to help other people. I’m so committed to this now I will do everything in my power to help. [/p][p][br][/p][p]This page has been set up for the people who are unable to attend the golf event in august. [/p][p][br][/p][p]A huge thank you from myself, Kirsty , Tallulah and our families. Your love and support hasn’t gone unnoticed. [/p][p][br][/p][p]Monte Grey, our little star.[/p][p]You’ve fought so hard, you’ve come so far.[/p][p] [/p][p]We wish this was all just a terrible dream.[/p][p]The days get no easier, not how they should be.[/p][p] [/p][p]Only seeing you twice a day is the hardest thing.[/p][p]We want you at home, not wired up to that horrible thing.[/p][p] [/p][p]The pipes in your mouth, they hide the smiles[/p][p]That would melt the hearts of girls for miles.[/p][p] [/p][p]It’ll take some time for you to become strong.[/p][p]But we continue to build a truly special bond.[/p][p] [/p][p]When you’re ready to take your very first breath[/p][p]Mummy and Daddy will be there, with an ear on your chest.[/p][p] [/p][p]Tallulah has already started calling you Mon.[/p][p]She knows who you are and wants you to get strong.[/p][p] [/p][p]She’s made you a spot in your new playroom.[/p][p]To catch up on lost time that’s passed too soon.[/p][p] [/p][p]We’re being so strong, but it hurts us inside.[/p][p]When all we want’s for you to lay by our side.[/p][p] [/p][p]You’re so innocent, you’ve done nothing wrong.[/p][p]The way the world works sometimes is so wrong.[/p][p] [/p][p]We’ll look back on this when you’re a little bit older.[/p][p]See how far you’ve come and how you’ve gotten much taller.[/p][p] [/p][p]Saying a small prayer is all that we ask.[/p][p]To bring you home with us, in peace, at last.[/p][p][br][/p]
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Monte's Cup image 2

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Event

Personal Challenge Date

13 Aug 2021

Supporters


Oct 17, 2021

BDDGS

Monte at The Monty

£1300.00

plus £325.00 Gift Aid


Sep 8, 2021

Ryan hudson

£50.00


Sep 8, 2021

Charlie Jasper

In honour of Monte Munro x

£30.00

plus £7.50 Gift Aid


Aug 30, 2021

Anonymous

£20.00

plus £5.00 Gift Aid


Aug 29, 2021

Anonymous

£100.00


Aug 27, 2021

Annu and Charlotte Mayes

For your beautiful boy. Sending love xx

£20.00

plus £5.00 Gift Aid


Aug 27, 2021

Anonymous

Montes cup

£5348.00

plus £1337.00 Gift Aid


Aug 22, 2021

James Watkin

£50.00

plus £12.50 Gift Aid


Aug 19, 2021

Sian Nick and Charlie xx

Sending you all lots love.

£20.00


Aug 16, 2021

Charlotte & Morgan

Monte’s story will make a difference. You are the most incredible parents, a true inspiration.

£100.00

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