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Dreamflight Dreamers

7 team members

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Team story

[p]Dreamflight is an amazing UK charity that each year takes 192 children with a life changing illness or disability to Orlando, Florida for 10 amazing days without their parents. Established in 1987 and operating annually since, Dreamflight believes that fun and joy are just as important as medical research and equipment - especially for children who perhaps can't wait long enough for the breakthrough they need or whose illnesses and treatments have brought pain, distress and disruption to their lives.[/p][p]My Daughter Ruby who is 12 was one of those lucky enough to be nominated and selected for a place on this years trip. Please take a few minutes out of your day to read about Ruby and why we are fundraising for Dreamflight![/p][p]Ruby is truly an amazing and inspirational kid. At 6 months old she was diagnosed with an Arterial Venous Malformation (AVM) in her brain and shortly afterwards she started having seizures and then a brain haemorrhage all before she was 7 months old. She had life saving brain surgery then but she was left with life changing disabilities as a result of the haemorrhage. Ruby had complex epilepsy, enduring up to 20 seizures and day, she has left sided hemiplegia (like cerebral palsy) and Autistic Spectrum Disorder. As a result of all of this she also suffers from generalised and separation anxiety which also has a huge impact on her daily life.[/p][p]Following on from the first surgery she has undergone various other surgeries and procedures including regular MRIs, a tendon transfer, eye surgery, and various EEGs. She was eventually referred to Great Ormond Street and after around 18 months of impatient and outpatient investigations she underwent Epilepsy Surgery where the disconnected/removed the part of the brain that was causing the seizures. Thankfully, since then Ruby has been seizure free.[/p][p]She does, however face significant daily challenges that have a huge impact on her daily life and confidence. Despite being outgoing and gregarious Ruby struggles to make and maintain friendships and her ASD makes it difficult to understand the reasons for this. This coupled with crippling fears of the unknown make day to day life quite a challenge. Sadly, Ruby has also recently been the victim of bullying at school.[/p][p]Throughout all of these challenges Ruby remains and kind and caring girl whose smile can light up the room. She has a great sense of humour and thinks about the needs of others. She is an amazing big Sister to 6 year old Ivy (who totally idolises her big sister!) Every morning she plasters a smile on her face and goes to school even though she knows she is likely to spend most the day socially isolated. [/p][p]Ruby’s Dad and I would move Heaven and Earth for Ruby and we push her every day to be the best person she can be but Dreamflight has given her something that we never could…the chance to explore her independence, the opportunity to spend 10 days with children who have lives just like hers and the ability to see beyond her limitations….all that while having blast nailing 7 theme parks in 10 days! [/p][p]Nothing can make up for a childhood spent in hospitals, ambulances or on meds that suck the life out of you but Dreamflight can give these children an opportunity to see that their illness or disability is not the only thing that defines them.[/p][p]None of this would be possible without the army of Doctors, Nurses, Physios and other amazing volunteers who gave up time with their own families to look after other peoples children 24 hours as day for 10 days. Them along with the pilots, cabin crew, UK Dreamflight staff and volunteers and another team in the USA along with a colossal amount of fundraising. Each year the trip costs in the region of £750k which is around £3500 per child. [/p][p]I am passionate about ensuring that other children can have the same amazing experience as Ruby so it will come as no surprise to anyone that knows me (😊), that I have decided to do a crazy challenge to raise funds for Dreamflight! [/p][p]I have signed up for Race to the Stones 2020. This is just a quick 100km (62 miles!) none stop walk along Britain’s oldest path – The Ridgeway, ending at the iconic Avebury Stone Circle! The great news is I have also managed to enrol a crazy bunch of my friends to do it with me…big hats off to you guys to doing this with me![/p][p]Amazing effort if you have read this far......now all that is left to do is dig deep and donate as much as you can to ensure other kids with life changing illnesses or disabilities get the change to go on Dreamflight.[/p]
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Supporters

Dec 24, 2019

Martin and Angela

Good luck with your walk.

£60.00 plus £15.00 Gift Aid

Nov 8, 2019

Matt

Thank you Dreamflight !

£150.00

Jenni Smith

Jenni Smith

Sara Turnock

Sara Turnock

Jennie Wheeldon

Jennie Wheeldon

Sarah Wurr

Sarah Wurr

Wendy Bee

Wendy Bee

Natalie Bishop

Natalie Bishop

Sarah Williams

Sarah Williams