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Profile

Dylan Ward

Walk for NF2

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]My name is Dylan Ward, aged 13 years. [/p][p]I am doing my Bronze Duke of Edinburgh Award and I am volunteering with NF2 BioSolutions UK raising awareness and funds to advance gene therapy and immunotherapy for a treatment to NF2.[/p][p]I will be doing 100 laps around the block where i live. Each lap approx. half a mile, in total I will be walking 50 miles for NF2. It will be cold but hopefully no snow.[/p][p](NF2) is a rare genetic disorder that affects approximately 1/35,000 individuals globally, it results in the growth of multiple tumours throughout the central (brain & spine) and peripheral nervous systems. As the tumours grow, they cause permanent and life changing damage. There is no cure.[/p][p]My brother, Oscar aged 9 has NF2. My mum has got it too and he inherited it from her. Oscar has 3 brain tumours (2 Vestibular schwannomas and 1 meningioma) and 4 spine tumours and must be monitored closely in case they grow. As the tumours grow they will do more damage. Already he has a spine tumour that is causing mobility problems and damaging the nerves in his leg which means he has foot drop and is developing a club foot. He will need surgery in a few years, but the damage has already been done, they cant remove the spine tumour though as its too risky.[/p][p]Our hope is for a cure with gene therapy that is why I am supporting NF2 BioSolutions UK, so Oscar can live the life hes meant to and he can play football with me and all his mates. Oscar has a low level hearing loss too, I don’t want him to become deaf though cos we enjoy playing together and listening to music together, but we wont be able to do that if he’s deaf and that’s scary and sad.[/p][p]Not many people have heard of NF2 either, so I want to raise awareness then maybe more doctors can help us get a cure.[/p][p]I want to help Oscar and all the other children in the world affected by NF2 so they can grow up with better lives, but without the money for gene therapy research then it wont happen.[/p][p]So I decided that I could make a difference by volunteering for the charity and raising some money while raising awareness. [/p][p]Please support me all you can.[/p]
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Event

Personal Challenge Date

17 Apr 2021

Supporters

Feb 18, 2021

Anonymous

£30.00

Feb 17, 2021

Cathy

Well done Dylan, HOPING for a cure. Xx

£50.00 plus £12.50 Gift Aid

Feb 15, 2021

craig floate

Well done young man!!!!

£50.00 plus £12.50 Gift Aid

Feb 15, 2021

Anonymous

Good luck with the walk and with the fundraising!

£15.00 plus £3.75 Gift Aid

Feb 15, 2021

Noel Hastings

Well done Dylan. I'm sure your family are very proud of you. My daughter Hayley has a type of NF2 so I know this illness well.

£50.00 plus £12.50 Gift Aid

Feb 15, 2021

Christa

Good luck!

£10.00 plus £2.50 Gift Aid

Feb 5, 2021

Teresa

Thank you Dylan your doing a great job

£30.00

Feb 5, 2021

Diana

Well done Dylan for helping find a cure for Nf2

£20.00

Feb 5, 2021

Laura at Chilwell Products Ltd

Good luck with your walk Dylan, I'm sure your brother and the rest of your family are extremely proud of you. You've done so well so far, I wish you all the best with the rest of your challenge!

£75.00

Feb 4, 2021

The MEDIAmaker Team

Dear Dylan, you have already made great progress in your efforts. We wish you well with your campaign and congratulations on stepping up to challenge NF2, you have lots of support, good luck!

£100.00