Dylan Ward

Dylan Ward

Mini Marathon for NF2

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]My name is Dylan Ward, aged 14 years.[/p][p]I am doing my Bronze Duke of Edinburgh Award and I am volunteering with NF2 BioSolutions UK raising awareness and funds to advance gene therapy and immunotherapy for a treatment to NF2.[/p][p]I have already raised over £7000 from my sponsored Walk for NF2 and Plant Sale[/p][p]My final Duke of Edinburgh fundraising task will be to complete the Robin Hood Mini Marathon on Sunday 26th September 2021. My brother Oscar who has NF2 will also be running the race with me.[/p][p].NF2 is a rare genetic disorder that affects approximately 1/35,000 individuals globally, it results in the growth of multiple tumours throughout the central (brain & spine) and peripheral nervous systems. As the tumours grow, they cause permanent and life changing damage. There is no cure.[/p][p]My brother, Oscar aged 10 has NF2. My mum has got it too and he inherited it from her. Oscar has 3 brain tumours (2 Vestibular schwannomas and 1 meningioma) and 4 spine tumours and must be monitored closely in case they grow. As the tumours grow they will do more damage. Already he has a spine tumour that is causing mobility problems and damaging the nerves in his leg which means he has foot drop and is developing a club foot. He will need surgery in a few years, but the damage has already been done, they cant remove the spine tumour though as its too risky.[/p][p]Our hope is for a cure with gene therapy that is why I am supporting NF2 BioSolutions UK, so Oscar can live the life hes meant to and he can play football with me and all his mates. Oscar has a low level hearing loss too, I don’t want him to become deaf though cos we enjoy playing together and listening to music together, but we wont be able to do that if he’s deaf and that’s scary and sad.[/p][p]Not many people have heard of NF2 either, so I want to raise awareness then maybe more doctors can help us get a cure.[/p][p]I want to help Oscar and all the other children in the world affected by NF2 so they can grow up with better lives, but without the money for gene therapy research then it wont happen.[/p][p]So I decided that I could make a difference by volunteering for the charity and raising some money while raising awareness.[/p][p]Please support us both all you can so we can raise lots more money.[/p][p][br][/p][p] [/p]

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Event

Personal Challenge Date

26 Sep 2021

Supporters


Sep 23, 2021

Beverley Salisbury

Good luck and well done for raising awareness!

£10.00


Sep 18, 2021

Anonymous

£15.00


Sep 17, 2021

Lori x

Good luck Dylan, your amazing x

£10.00

plus £2.50 Gift Aid


Sep 17, 2021

Nicole and David

Good luck Dylan and Oscar!

£20.00

plus £5.00 Gift Aid


Sep 17, 2021

Dymphna McGowan

Good luck. You're a star!

£25.00

plus £6.25 Gift Aid


Sep 16, 2021

Andy White

Go Oscar and Dylan - heroes both...!!!

£50.00


Sep 8, 2021

Mandy

Have a great race both of you.

£15.00


Sep 7, 2021

Barbara Callander

Good luck Dylan & Oscar xx

£15.00


Sep 6, 2021

Ali

Good luck Dylan 🏃

£10.00

plus £2.50 Gift Aid


Sep 5, 2021

Gill Reynolds

Well done and good luck - great cause

£30.00

plus £7.50 Gift Aid

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