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Profile

Elise Dyer

RunningForB12

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]Hi everyone![/p][p]So here we are, here I am with my Virgin Marathon 2019 fundraising page.[/p][p]My chosen charity is The Pernicious Anaemia Society. ‘What’s that?’ ‘Never heard of that’ are most of the responses i’ve been hearing. Well exactly! [/p][p]This almost hidden autoimmune disease unfortunately holds more sufferers than the world has effectively diagnosed to date. The body’s inability to absorb vitamin B12 from food. Vit B12 is essential in forming healthy red blood cells and without it the body simply cannot carry oxygen around itself. If the lack of B12 is not addressed then a person will die. [/p][p]Also people can simply be deficient in this essential vitamin from not consuming enough through their diet. There is also another category of sufferers which is the one I fall into, Inflammatory Bowel Disease patients. IBD sufferers with diseases such as Crohns, Colitis and Ulcerative Colitis often have such inflammation in their intestines that their absorbtion abilitiy is compromised. I myself am post surgery living without the section of intestine needed to absorb any B12 called the ileum.[/p][p]Symptoms of low B12 levels are the same or similar to many other diseases and illnesses. This is leading to many misdiagnosed conditions including MS, ME, Chronic fatigue syndrome, Alzheimers to name but a few! Our aim is to raise awareness not only with the general public but also with healthcare professionals for better understanding, diagnosis and treatment. Research with the PAS ([url=http://pernicious-anaemia-society.org]pernicious-anaemia-society.org[/url]) is ongoing and moving forward into a new exciting generation to achieve better results for sufferers. [/p][p]My B12 journey really started 10 yrs ago back in 2008 although little did I know it back then.. Due to Crohns disease I had 130cm of my small and large intestines removed.. including my very beloved and deeply missed Ileum valve ??. This is the join between small & large intestine where B12 is absorbed. About 7 yrs later I had grown slowly more and more well ‘knackered’ is the best word to describe it! My body had no energy, my mind and memory was one big fog. Words didn’t come out of my mouth properly when speaking. No matter how much I slept it made no difference, my brain and body were just not working either in sync or seperately! With 2 young kids and being almost 40 I just, like many others put it down to the usual, being a shattered mother! This went on for a couple of years until one day I had 4 coldsores ( yep 4!) arrive on my bottom lip, the corners of my mouth were permanently split. I was also spending about 5 days of the week with a migraine. My skin was itching like crazy and my head spinning with ringing in my ears. Irritable beyond a respectable level as everything was SUCH a struggle. It dawned on me the realisation one day that I was struggling to take care of my kids and just function. One day my heart was palpitating out of my chest whilst sitting at my computer and I thought ‘NO THIS IS NOT NORMAL! All of this is NOT NORMAL’ I noticed on my Facebook forum for Crohns and Colitis sufferers that many fellow members were often talking about B12 so I decided to go and ask my Dr for a blood test to confirm what I already knew. (My Dr had previously told me that my fatigue was due to my medication for my Crohns). My tests came back the following day and low and behold there it was, a dangerously low level of 50 returned from the blood lab. I was also dangerously hypertensive due to my body literally shutting down now. I was running on empty completely and needed shots of B12 urgently every other day for 2 wks to get me into a normal range, followed then by every week. The only way to describe how you feel after a few days of receiving shots is like someone has plugged you into a socket and is charging you up! [/p][p]B12 decline is a slippery downward decline and not something you suddenly notice such as with other problems that might occur in the body. For me my body was dying and the reality of that and the survival instinct kicked in just at the 11th hour, before possibly a stroke or heart attack occurred. [/p][p]Luckily for me I’ve escaped without any serious damage to my nervous system, my limbs are thankfully working ok. Although I am sure that the years of brain fog have left me with something going on with parts of my brain function regarding concentration in particular. [/p][p]Anyway back to running..... I’m running and enjoying it. Today I received my new proper posh Garmin running watch in the post and a great new book ‘Running your first Marathon’. Yes it’s my first and who knows if it will be my only marathon or not. I’m not a ‘proper’ runner. I’ve only run 10km in one time ever in my life so this is a real challenge for me. I am a running pharmacy currently as I’m on a course of Immunotherapy following surgery in April 2018 for an abscessed recto vaginal fistula (yep i’m keeping it real and giving you all the info I know), which includes fortnightly injections of Humira and 150mg of oral Imurel daily.[/p][p]So i’m running through my medications which is also a challenge in itself, along with many others who inspire me to know it is possible.[/p][p]Thank you for reading and please check out our amazing website for more info: [url=http://pernicious-anaemia-society.org]pernicious-anaemia-society.org[/url] The charity is International and based in the UK run by volunteers.[/p][p]A HUGE thank you for your sponsor without all of your support it would be a much much harder training journey. [/p]

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Supporters

25-Nov-2018

Sarah McAndrews

Well done missus 😘😘💜💜

£25.00 plus £6.25 Gift Aid

25-Nov-2018

The. Moates. Family

See you at the finish line. Xx

£25.00 plus £6.25 Gift Aid

20-Nov-2018

Roger and Debra Tarrant

Good luck Elise, keep on runnin'!

£20.00 plus £5.00 Gift Aid

13-Nov-2018

Georgina Fillmore

£15.00 plus £3.75 Gift Aid

12-Nov-2018

Graham and Jacquie

Well done we know you can do it!

£50.00 plus £12.50 Gift Aid

11-Nov-2018

Richard Dyer

£15.00

08-Nov-2018

Dad and Di

Good luck with this challenge, we are so proud of you xx

£100.00 plus £25.00 Gift Aid

06-Nov-2018

Pam and Nick

Good luck Elise

£20.00 plus £5.00 Gift Aid

01-Nov-2018

James Twitchin

Good luck Elise! Get your training in & stock up on energy gels!

£10.00 plus £2.50 Gift Aid

23-Oct-2018

Anonymous

Good luck! And go get 'em:)

£30.00