https://uk.virginmoneygiving.com/Team/

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Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

Team story

[p]After my gorgeous nephew Elliot was diagnosed with Duchenne Muscular Dystrophy (DMD), a devastating muscle-wasting disease, I pledged to walk and run the 600km distance between me and Elliot, over 6 weeks, and try to raise £600 in support of the 'Duchenne Dash At Home'. However so many wonderful friends have been touched by my sister's story, and have come forward to support Duchenne UK with me, and hopefully smash our goal.[/p][p]DMD is rare genetic disorder, primarily found in boys, which means Elliot can't produce a protein called dystrophin, vital for muscle growth. Without dystrophin, the muscle cells waste away & die & once they are gone, they are gone. [/p][p]Typically, boys with DMD lose the ability to walk between the ages of 8-12, they become paralysed from the neck down by their late teens & eventually the muscles around their lungs & heart cease to function. Life expectancy is early 20's. [/p][p]DMD is 100% fatal, treatments are ineffective & currently there is no cure. [/p][p]But in amongst this darkness, there is a glimmer of hope. Around the world there is a global army of scientists trying to find suitable treatments & hopefully even a cure for Duchenne. [/p][p]Duchenne UK has one clear aim - to end Duchenne. They connect the best researchers with industry, the NHS and families to challenge every stage of drug development to make the incurable, curable. Together, we will find treatments and cures for this generation of patients with Duchenne.[/p]

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Supporters


Jul 12, 2021

Sharon Glasgow

For Elliot, sending love & hope

£30.00

plus £7.50 Gift Aid


Jul 8, 2021

ShonaStewart

Well done everyone for supporting this wonderful fundraiser

£30.00

plus £7.50 Gift Aid


Jul 6, 2021

Kim Ballantyne

Well done everyone on your walking efforts over the last few weeks. You were all amazing. Lots of love to Elliot and family xx

£20.00

plus £5.00 Gift Aid


Jul 6, 2021

Mimi

Good luck Liz! Xx

£10.00

plus £2.50 Gift Aid


Jul 5, 2021

Monty and Lisa

£200.00

plus £50.00 Gift Aid


Jul 5, 2021

Janet Holdsworth

£15.00


Jul 5, 2021

lizjquinn@hotmail.co.uk

Lots of love to Elliot x

£30.00

plus £7.50 Gift Aid


Jul 4, 2021

Julie Devine

Here's hoping all these efforts help find some treatment for this, keep fighting Elliot and family xx

£100.00

plus £25.00 Gift Aid


Jul 4, 2021

Anonymous

£200.00

plus £50.00 Gift Aid


Jul 4, 2021

dnalndsy@yahoo.co.uk

NEGU x never ever give up x

£15.00

plus £3.75 Gift Aid

Liz Quinn

Liz Quinn

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