Emma Williams

Emma Williams

300km for Elliots Endeavours

For Elliot's Endeavours Link opens in a new window

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]I’ve pledged to complete 300km for the Duchenne Dash at Home challenge! [/p][p]?I’m completing this challenge for a very special little boy Elliot. When Arthur was four months old I took him to a baby class where we met Elliot who joined at the same time. There is only month month between them and it was adorable seeing them become little buddies.[/p][p]Elliot has been diagnosed with Duchenne Muscular Dystrophy (DMD). It's taken years to get Elliot diagnosed (not helped by Covid). [/p][p]DMD is rare genetic disorder, primarily found in boys, which means Elliot can't produce a protein called dystrophin, vital for muscle growth. Without dystrophin, the muscle cells waste away & die & once they are gone, they are gone. [/p][p]Typically, boys with DMD lose the ability to walk between the ages of 8-12, they become paralysed from the neck down by their late teens & eventually the muscles around thier lungs & heart cease to function. Life expectancy is early 20's. [/p][p]DMD is 100% fatal, treatments are ineffective & there is no cure. [/p][p]The Vers family are totally crushed as you can imagine. [/p][p]Amongst this darkness, there is a glimmer of hope. Around the world there is a global army of scientists trying to find suitable treatments & even a cure for Duchenne. [/p][p]Duchenne UK, a charity founded by 2 mothers of Duchenne boys who have already made huge waves in the last ten years trying to get clinical trials into approved treatment for the NHS. Clinical trials can take anything between 15-20 years to get approved. Time myself & other parents just don't have. Duchenne UK are working hard to make clinical trials available for all Duchenne patients to participate in should they wish. All the money raised for Duchenne UK goes back into clinical trials. [/p][p][br][/p][p]The best things about this cause, is that Lucy and Will (Elliots Parents) get to choose what clinical trials the money raised goes into, which means you actually get to see where your money goes & see first hand how you are changing a little boys life. [/p][p]Duchenne UK has one clear aim - to end Duchenne, a devastating muscle-wasting disease. As the leading Duchenne charity in the UK, they connect the best researchers with industry, the NHS and families to challenge every stage of drug development to make the incurable, curable. Together, we will find treatments and cures for this generation of patients with Duchenne.[/p][p]Thank you for taking the time to read the story. [/p][p]Emma x[/p][p][br][/p]
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Supporters


Jul 5, 2021

Tanya Parmee

Well done Emm

£20.00

plus £5.00 Gift Aid


Jul 3, 2021

Anonymous

Well done Emma!

£5.00

plus £1.25 Gift Aid


Jul 3, 2021

Jen

Well Done Em! You have done so well!!! For a gorgeous little boy. Love Mum xxx

£100.00

plus £25.00 Gift Aid


Jul 2, 2021

Anonymous

Great effort Mum. Love Arthur

£50.00

plus £12.50 Gift Aid


Jul 2, 2021

Trina

Well done on your wonderful achievement and a great cause. Love Trina x

£15.00


Jul 1, 2021

Kate

£15.00

plus £3.75 Gift Aid


Jun 14, 2021

Angela Gibson

Well Done Emma, such a good cause.

£5.00

plus £1.25 Gift Aid


May 27, 2021

Michelle

Well done Em :)


May 25, 2021

jud

£15.00

plus £3.75 Gift Aid


May 22, 2021

Corina

Well done Emma, all the best xx

£10.00

plus £2.50 Gift Aid

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