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Profile

Nicky Williams

Isla Williams FOP Fight

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]Hello and thank you for visiting Isla's page.[/p][p]I am the proud mummy of Isla, at 3months old (March 2014) our beautiful princess was diagnosed with FOP (Fibrodsyplasia Ossificans Progressiva).[/p][p][span=background-color: rgba(255, 255, 255, 0);]FOP is one of the rarest and most disabling genetic conditions known to medicine. [/span][span=background-color: rgba(255, 255, 255, 0);]FOP progressively forms a second skeleton that imprisons the body in bone. FOP turns otherwise healthy people like Isla into human statues; a healthy mind locked inside a frozen body.[/span][/p][p]Isla has suffered significant FOP progression for her young age, causing decreased mobility. Her arms are locked bent and she has scoliosis in her spine and almost no movement in her neck and shoulders.[/p] [p]Our world fell apart when we found out Isla had FOP but thankfully the UK charity, [span=background-color: rgba(255, 255, 255, 0);]FOP Friends were there for us from the start and we soon learnt that a cure is looking hopeful within Isla's lifetime. The donations you make will be used to make this hope a reality.[/span][/p][p]Please help spread the word to raise these much needed funds.[/p][p]Thank you so much,[/p][p]Nicky xx[/p]

Share Nicky's story

Charity

FOP Friends

FOP Friends

Supporters

03-Oct-2018

Anonymous

Hope this helps, sent with love

£200.00 plus £50.00 Gift Aid

08-Aug-2018

Melissa Borris

I was so touched when I met you a few years ago, I really wanted to raise some funds for your cause - better late than never! It's good to hear through Diana that Isla is an incredibly brave and strong little girl too-like mum, you must be so proud of her

£600.00

02-Aug-2018

Tanya

Money made at the Hungry Horse Charity Fun Day.

£160.00 plus £40.00 Gift Aid

27-Jul-2018

Suki

For an amazingly worthwhile cause, hope the fundraising goes well.

£5.00

14-Jul-2018

Anonymous

A kind donation from Phyllis Brosnan xx

£315.00 plus £78.75 Gift Aid

16-Jun-2018

Anonymous

Dell Park Farm x

£634.00 plus £158.50 Gift Aid

27-May-2018

McFetrich Family

Thinking of Isla and all her FOP friends-we hope the FOP conference went well for you all xxx

£50.00 plus £12.50 Gift Aid

05-May-2018

Anonymous

£170.00 plus £42.50 Gift Aid

24-Apr-2018

Joelle

£50.00 plus £12.50 Gift Aid

09-Apr-2018

Jen

Bex A belated second donation following completion of your dryathon..... I knew you’d succeed. Hoping the fundraising target continues getting closer. Jen

£15.00 plus £3.75 Gift Aid