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Nicky Williams

Isla Williams FOP Fight

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]Hello and thank you for visiting Isla's page.[/p][p]I am the proud mummy of Isla, at 3months old (March 2014) our beautiful princess was diagnosed with FOP (Fibrodsyplasia Ossificans Progressiva).[/p][p][span=background-color: rgba(255, 255, 255, 0);]FOP is one of the rarest and most disabling genetic conditions known to medicine. [/span][span=background-color: rgba(255, 255, 255, 0);]FOP progressively forms a second skeleton that imprisons the body in bone. FOP turns otherwise healthy people like Isla into human statues; a healthy mind locked inside a frozen body.[/span][/p][p]Isla has suffered significant FOP progression for her young age, causing decreased mobility. Her arms are locked bent and she has scoliosis in her spine and almost no movement in her neck and shoulders.[/p] [p]Our world fell apart when we found out Isla had FOP but thankfully the UK charity, [span=background-color: rgba(255, 255, 255, 0);]FOP Friends were there for us from the start and we soon learnt that a cure is looking hopeful within Isla's lifetime. The donations you make will be used to make this hope a reality.[/span][/p][p]Please help spread the word to raise these much needed funds.[/p][p]Thank you so much,[/p][p]Nicky xx[/p]

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FOP Friends

FOP Friends




Hope this helps, sent with love

£200.00 plus £50.00 Gift Aid


Melissa Borris

I was so touched when I met you a few years ago, I really wanted to raise some funds for your cause - better late than never! It's good to hear through Diana that Isla is an incredibly brave and strong little girl too-like mum, you must be so proud of her




Money made at the Hungry Horse Charity Fun Day.

£160.00 plus £40.00 Gift Aid



For an amazingly worthwhile cause, hope the fundraising goes well.




A kind donation from Phyllis Brosnan xx

£315.00 plus £78.75 Gift Aid



Dell Park Farm x

£634.00 plus £158.50 Gift Aid


McFetrich Family

Thinking of Isla and all her FOP friends-we hope the FOP conference went well for you all xxx

£50.00 plus £12.50 Gift Aid



£170.00 plus £42.50 Gift Aid



£50.00 plus £12.50 Gift Aid



Bex A belated second donation following completion of your dryathon..... I knew you’d succeed. Hoping the fundraising target continues getting closer. Jen

£15.00 plus £3.75 Gift Aid