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Profile

Heather Dearlove

Exercise bike Fred Whitton challenge X2

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]I am going to complete the Fred Whitton Lake District Cycle Challenge of 113 miles twice totalling 226 miles. Twice because the figures for with the 26 challenge and secondly because it takes in all the Lakeside passes which are gruelling and the distance matches the tough ascents.[/p][p]I am attempting this on a magnetic bike adding further merriment by playing with a pair of 1970's Clackers to while away the time.[/p][p]I would not be allowed on a real bike because! In November 2017 I fell over my son's Nerf gun and ended up with a fracture of my left humerus and dislocated left shoulder. Simple enough to heal but being 1 in every 13000 people, I developed a condition called Complex Regional Pain Syndrome. I was lucky that my osteopath recognised it otherwise I would still be wondering what it was.[/p][p]The pain was and still can be off the charts. I can say it is worse than childbirth and lasts a lot longer. No painkillers could touch it. Not even morphine. On the McGill scale of Pain of 50 CRPS can range between 42 - 47. Far worse than phantom limb pain for example. [/p][p]I couldn't leave the house for a year due to pain caused by the cold. I t causes exceptionally painful muscle contractions. I have days when my arm feels as if it has been through a mangle made of ice. My hand folds into a claw. My fingers turn black, blue, purple, red and white. My CRPS reacts to extremes of temperature. I can wear so many layers on it lookd like I havbeen lagged for winter. πŸ˜„πŸ˜„πŸ˜„[/p][p] On a good day (not often) I have pins and needles, cramp and numbness. I can't hold cutlery. The touch of cloth or water hurts.[/p][p]The condition is caused sometimes by injury or even a needle stick. Sometimes by nothing at all. [/p][p]It can, as in my case be caused by damage to the peripheral nervous system which means that the brain sends constant pain signals to the affected area. It can spread even to internal organs. It causes muscle wastage and in some cases amputation. My condition has spread to the right side, the whole upper left quadrant of my body and my legs.[/p][p] I wasn't given a diagnosis or the extreme physiotherapy to stop it becoming irreversible, but in the two or more years I've lived with it - it came as no surprise when I received a confirmatory diagnosis just before Christmas . There is no cure. I will have this condition for many years and it will continue to cause considerable pain. So said Dr Andreas Goebel. Pain Consultant at the Walton Centre at Fazakerly, Liverpool.[/p][p]Not nice to hear but because I have had boat load of support from the brlliant Walton Centre and more importantly from Burning Nights CRPS set up by barrister Victoria Abbot-Fleming ( have a look at their website) .[/p][p]I was also supported by Carers Support South Lakes who helped me get my head around it all.[/p][p]I applied for a Hearing Dog ( yep - as a post but comes in handy when your kid demands sweets/Roblox cards etc) . But couldn't have one as we already have a pooch.[/p][p]So off we toddle up to Freezing Temple Sowerby where we found Blue 20 months old and in a bad way.[/p][p]The folks at Eden Animal Rescue are the most dedicated bunch I have ever met and they're mostly volunteers. So I am including them as well. Animal charities were fown by Β£96 million by early April[/p][p]Because abuse figures are on the rise I would like to support the Birchall Trust which is a Barrow based charity for abuse and rape victims. The amount of people needing their services increases daily. Their funding does not.[/p][p] So far managed the London Marathon and clocked up 150 miles. Completed 21 km 2 week s ago but since taking a tumble post this effort where I split my head open and sustain whiplash. Haven't been back on it - yet. T'aad feel also had to saw 3 inches off the bike as my legs were too short to teach the pedals.[/p][p]Doing this challenge is painful so I can't do it every day but Victoria who I mentioned, at the age of 27 years, because of CRPS, had both her legs amputated above the knees. I have still got mine so as I can use them to help raise money by pedalling away for these charities, so will keep going and is is why I am asking for your support.[/p][p]To all who have supported me so far -[/p][p]THANK YOU!![/p][p]Heather.[/p][p]26 April London Marathon 42 k 200m in 2hrs dressed as a gnome![/p][p][img]https://lh3.googleusercontent.com/NOpcFBNO8kTYv8NSpmDguWmp63226vGLnSfaQQBs6Gf6lyJA8dP_Dulmggu7zClkPKOJtAEtnwDHHl7qNvmQpQQyBYrFkRYpiEKn-DtUulNugWVdz-lXvvmqfGQNuOvgwUNQgaXoGS2_D5L2npGzBXBnJF4pI-scA4MV_z7tS0Y8chEW58UJsTOhl_EynuYycggOsIhk8EJd1YNkTNhAYWtF4iAY8IxDUc8jkI3srsD-bXE2n8XUxHrHBXoEjQ8lV2zwuVLEyRMWMi_zdLi8QUmX8ADY-xBuF0VYfLS-b7cD_dWGSDvG64fVteO0jLKAtoabvOnoLEXjtxAKJLKmsgpT09gy2Pj0NU2D0LJE-mqKKnIG39AdUn13zUFm1q-phPaxfRsE3oa6KbeNdCmFglQuoaGx7wdDtrkm8tcLr7682xWnl1fDPjexDR8WZwG3YQr10loyL-uEAEKpvlzZHSgNilkyAtePuN_guqBojnWaC-s4T290OY66zlh169pIeEXT4C01Jb4ZUYriI8TTcLJ0Xr5jK__SUqDM0j76DX4uIwuQrCxIyWggIqxbvAvTd5-82kdlSML9Q5Ls7eiFXC7xunFeCHqYJg1Km6Wu10qoqESPgGjUheQHGKDEBtWNgO12ChiQmdtk8h4Acts4bUy1-Vh9Fw7THlz4K2Z9jzDr_aR2p0L0nb3MfPK-rWNM8dyYobLCjxa6HxDYmRNmvRT8au2UPHtAeaEJfCG9LU8oun_yBB50JII=w351-h346-no[/img][/p]
Exercise bike Fred Whitton challenge X2 image 1

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Supporters

May 12, 2020

Irene Bull

Just an amazing challenge well done Heather. You are doing this for Burning Nights CRPS charity which is a brilliant charity . They work tirelessly to raise awareness as well as providing help and support to sufferers.

£15.00 plus £3.75 Gift Aid

May 2, 2020

Liz and Clive

Chapeau Heather!

£20.50 plus £5.13 Gift Aid

Apr 30, 2020

Anonymous

Good luck Heather,Blue will be cheering you on.

£15.00 plus £3.75 Gift Aid

Apr 29, 2020

Lynne Smith

Well done Heather

£10.26

Apr 27, 2020

Frank

Smurf’s Up

£30.00

Apr 27, 2020

Frances Flower

Good luck Heather. I hope all goes well and I am full of admiration. I know the charities you are supporting will be grateful for your support. One bonus of doing your Fred Whitton challenge indoors is you don’t risk a puncture!! Fran xx

£25.00 plus £6.25 Gift Aid

Apr 26, 2020

Anonymous

Well done Heather. Some very worthy causes there. X

£10.00 plus £2.50 Gift Aid