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Sell your unwanted stuff with Ziffit and support JO's fundraising effort.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p][b]CISSY’S STORY[/b][/p][p]To say I’ve grown up at the [b]Evelina London[/b] is an understatement![/p][p]I was diagnosed with a serious congenital heart condition before I was born and was referred to the [b]Evelina London[/b]. After being born at Guy’s Hospital, I had open heart surgery there aged 6 months and then again at two years. Thanks to the skill of the surgeons, doctors and nurses, I was able to live a normal life until I was about 10 years old, when my health began to deteriorate so I returned to the [b]Evelina London[/b] for major open-heart surgery. [/p][p]Although the ground-breaking surgery went well, my heart couldn’t cope with the changes that had been made to it and I “crashed” with my parents at my bedside - needing CPR and then full life support. This crisis led to end-stage heart failure. Fully ventilated, with a tracheostomy, I spent four months in children’s intensive care, undergoing countless surgeries and procedures as the team fought night and day to keep me alive. The nurses went to endless lengths to ensure I retained some quality of life and childhood during those horrendous months including reading and playing with me, decorating my bed space and organising a party for my 11th birthday. They also supported my terrified parents, giving them the strength to carry on during the most unbelievable ups and downs.[/p][p]Then came the bombshell - the only way I could survive was by having a heart transplant. The Cardiac doctors at the [b]Evelina[/b] fought to get me put on the Transplant waiting list and after four more months waiting for a new heart I was finally given the gift and following four months’ recovery I was allowed home - a total of 8 months spent in intensive care. [/p][p]Unfortunately, after such a long spell of critical illness, my kidneys had been irreversibly damaged and I then had to undergo gruelling dialysis at the [b]Evelina London[/b] three days a week. In 2012, I got a second gift, a successful kidney transplant which the pioneering Renal Team at the hospital got me safely through. [/p][p]However, due to my prolonged illness my legs and feet had developed neuropathy and I lost my ability to walk. I was told I would never walk again and spent 3 years in a wheelchair, unable to even stand unaided. I eventually underwent major orthopaedic surgery at the [b]Evelina London[/b] in 2013 and took my first steps again 6 months later, defying all expectations.[/p][p]Sadly, it wasn’t over for me then. In 2014, unbelievably, I was diagnosed with transplant-related brain and spinal tumours and needed urgent treatment which was co-ordinated by the [b]Evelina[/b] [b]London[/b]. Thanks to their extraordinary dedication and determination to keep me alive when others would (and did) give up, I am now a strong and healthy 19-year-old studying at University, living a life I never dreamed would be possible. I hope to give back to the [b]Evelina London[/b] to repay them for the life they have given to me. [/p][p]To celebrate the 150th birthday of this amazing hospital, I have launched a campaign to raise lots of money to help them continue their incredible life-saving work. We are starting with a £15,000 target but know that with all the events we’ve got planned we will smash that, and will challenge ourselves by increasing the target as we go along! Please help by donating as little or as much as you can - every £1 makes a difference![/p][p]Lots of love Cissy xxx[/p][p][br][/p]

Share JO's story


Personal Challenge Date

10 May 2019


Mar 4, 2020

Sylvia Wilson

Another donation from Sylvia Wilson’s lovely friends from the Hemingfords and St Ives.


Feb 24, 2020


So much for a young lady and family to go through. My thanks to Evelina London for such marvellous care! Love James and Karen Lowe.

£25.00 plus £6.25 Gift Aid

Feb 7, 2020


Brilliant work Adamous!

£50.00 plus £12.50 Gift Aid

Jan 24, 2020

Sylvia Wilson and friends

With love from Sylvia Wilson (Cissy’s Grandmar!) and lovely Hemingford friends - collection from afternoon tea.


Nov 10, 2019

Angela Hantzalis

Amazing girl - hope you reach your target xx

£15.00 plus £3.75 Gift Aid

Nov 9, 2019


£20.00 plus £5.00 Gift Aid

Oct 30, 2019


Awesome video Cissy ! You are an amazing family and inspiration to all of us. Thank you xx

£50.00 plus £12.50 Gift Aid

Sep 28, 2019


I just read your story in Darling, what an incredible hospital. Wishing you all the health and best in life, you are such a brave girl, Cecilia! X


Jun 15, 2019


Best wishes! X


May 21, 2019


Apologies, a bit late to the party here ... but saw Jo walking through Leigh Place this week. So judging by that, a successful abseil! Jo & Cissy you are inspirations to us all :) xxx

£50.00 plus £12.50 Gift Aid