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James ODwyer

James ODwyer

Duchenne Dash + Fred Whitton Challenge

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]On the 3rd July, I will be taking part in the [b]'Duchenne Dash Around the World'[/b] event at Goodwood Motor Circuit, forming part of 300 cyclists aiming to collectively cycle the circumference of the globe (40,000kms) in just [b]12hrs[/b].[/p][p]Also I'll be taking part in the [b]'Fred Whitton Challenge'[/b], a sportive in the Lake District that has been dubbed the 'hardest of them all'. It's 113miles long with a ridiculous 3700m of elevation gain.[/p][p]And, just because I'm a big fan of lycra (& chamois cream!), I'm also going to ride the [b]South Downs Way[/b] (100miles [b]off road[/b]) and attempt to complete in sub 12hrs.[/p][p]All with the goal to raise awareness and donations to support [b]Duchenne UK[/b];[/p][p]Unfortunately this disease effects very close friends of mine, as their son (Henry, Henners to his mates!) was diagnosed with Duchenne 4 years ago at the age of 3. So if you are able to sponsor, no matter how little, I'd be hugely grateful.[/p][p][br][/p][p][i]Duchenne Muscular Dystrophy (DMD) is a genetic disease that causes muscle weakness and wasting.[/i][/p][p][i]Children born with DMD have a fault, known as a mutation, on their dystrophin gene.[/i][/p][p][i]Genes are smaller sections of your bodies DNA. They are the instructions that make our bodies work.[/i][/p][p][i]For people with DMD, the fault on the gene means that they cannot produce dystrophin, which is a protein that protects muscles. Without dystrophin, muscles get damaged more easily and so muscle strength and function is weakened.[/i][/p][p][i]DMD almost always affect boys, and is typically diagnosed in childhood. There are around 2,500 patients in the UK and an estimated 300,000 worldwide. It is classified as a rare disease.[/i][/p][p][br][/p][p]Thank you for the support.[/p]

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Supporters


Apr 10, 2021

Stavros Kouppas

Good luck!

£20.00

plus £5.00 Gift Aid


Apr 10, 2021

The Saul Family

Thank you thank you thank you! Love from the Saul’s

£50.00

plus £12.50 Gift Aid

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