Our site needs cookies

We need cookies to help you sign in, create a fundraising page and donate. If you want to fundraise or donate on our site, you will need to turn on cookies How to turn on cookies.

It looks like you are trying to access a charity account.

Please click here for the charity sign in page. If you are not trying to access a charity account, please contact us.

Profile

Joanne Fox

November Challenge

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]In December, 2013 my then 6 year old son was diagnosed with T1 Diabetes, which meant he was insulin dependent and had to take blood tests and inject as many as 7 - 8 times a day in order to stay alive. That is the easy bit! Knowing how much to inject is almost impossible and involves making assumptions, even factors like the weather, excitement or having a verucca can affect his insulin doses. Injecting too little insulin risks coma and death in the short term, or if he survives that it leads to long term complications of blindness, amputation, heart problems, kidney failure, increased risk of stroke and painful conditions like neuropathy. Injecting too much insulin is a medical emergency and leads to immediate danger, unconsciousness, seizures and death. [/p][p]Thankfully, we currently have an NHS which means my son receives all his health care and supplies free at point of use. I am grateful we do not even have to consider the costs of medical care and we can order supplies without even a thought of the cost to us (although we are very considerate with resources and only order what we need.)[/p][p]I learnt that in some countries, families can not afford insulin and I appreciate this is even happening in many Western Countries, but I did some research on what happens in developing countries where there is no NHS and also very little opportunity for people to simply work harder, earn more money and maybe they might even be faced by other challenges such as war, civil war, natural disasters, extreme poverty or inequality.[/p][p]I was saddened to learn that in India, many families can not afford insulin for their sick child and have to make a choice between feeding themselves or giving their child insulin. These families are already faced with extreme poverty and many are living off less than £1 a day, working all daylight hours in manual hard labour without a day off and it is impossible to earn more money. A strict caste (social class) system ensures these people can not move into higher paid jobs. Gender inequality means females can not find work. Many children in India have to leave education when they are diagnosed, this is due to social stigma but also so that the child can try find work to help pay for insulin.[/p][p]In my research, I came across The Pendsey Trust, who at the time had just registered as a UK charity. Pendsey raise valuable funds to help people with diabetes in developing countries who can not afford insulin. The Pendsey Trust was set up to provide a sustainable solution; families in the UK sponsor a child and the charity then fund education, vocational opportunities or business start up costs to enable the young person to eventually be self sufficient with their medication.[/p][p]I loved this idea so much that I ended up becoming a trustee of the charity as I became more and more involved.[/p][p]In 2017, I visited India and the clinic Pendsey Trust partner with. I met many children who have been helped by the Trust. I was prepared for some sad tales of children in dire need of help and I did get some of them, but I was not prepared to be meeting some successful young people who are independent, healthy and successful in life; all because they have previously received Pendsey Trust funding. [/p][p]Can you help us to help more children this month by leaving a small donation towards our lifesaving work?[/p][p]We are a100% volunteer led organisation, a charity ran entirely by devoted people who donate their time to help others and help us keep admin costs to zero, this means every penny gets through to the children in India who need our help most.[/p]
November Challenge image 1
November Challenge image 2

Share Joanne's story

Event

Personal Challenge Date

14 Nov 2019

Supporters

None yet – be the first to make a donation