Our site needs cookies

We need cookies to help you sign in, create a fundraising page and donate. If you want to fundraise or donate on our site, you will need to turn on cookies How to turn on cookies.

It looks like you are trying to access a charity account.

Please click here for the charity sign in page. If you are not trying to access a charity account, please contact us.

Profile

John Clarke

DUCHENNE DASH - Cycle London to Paris 24hrs

Challenge complete

Fundraising for this challenge has ended so we're no longer accepting donations. Thanks to everyone who supported this challenge.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

In December 2012 Felix, the now seven-year-old son of great mate Ali Robertson, was diagnosed with Duchenne Muscular Dystrophy, an incurable and fatal muscle wasting disease that kills more children than any other genetic condition. There is accelerating deterioration from birth, resulting in a significant decrease in quality of life by age 7 to 8, wheelchair dependency by early teens, total dependency by late teens and a lingering death in mid-twenties from lung failure and heart disease.Whilst it’s a particularly horrible disease, the reality is not as hopeless as it sounds, thankfully! Real progress is being made in the development of new treatments that have the potential to alter and hopefully even cure Duchenne. And in the shorter term, ongoing research is identifying a combination of repurposed drugs approved for the treatment of other diseases that are showing real promise in slowing and perhaps even halting the progress of the disease.Whether it’s novel or repurposed drugs, their development costs a lot of money, which is why I’m cycling from London to Paris [url=http://x-apple-data-detectors://9]on 7th June[/url], covering 300 km’s in 24 hours, with the aim being to raise as much money as possible to further vital research and get a combination or repurposed drugs in to trial and patients as quickly as possible.All the money raised will go to Duchenne UK [url=https://www.duchenneuk.org/]https://www.duchenneuk.org/[/url]. The charity was founded by Emily Crossley and Alex Johnson, both mothers of Duchenne boys. They’re unbelievably passionate and effective and almost all (90% plus) of the money they raise and receive funds research and trials. The charity is transforming the outlook for this and future generations of Duchenne patients.There really is no time to waste if we’re going to save Felix and this generation of Duchenne boys so please give as generously as you possibly can.THANK YOU![p][br][/p]

Share John's story

Event

Personal Challenge Date

07 Jun 2019

Supporters

Jun 13, 2019

Sara C

Well done, John!

£30.00

Jun 11, 2019

JP

Second time lucky they refused me last time! Well done Johnny xxx

£10.00 plus £2.50 Gift Aid

Jun 10, 2019

Liz W

Great effort for an amazing cause. Well done!

£60.00 plus £15.00 Gift Aid

Jun 10, 2019

Alison Canning

Better late than never (me that is!). Well done John. xx

£50.00 plus £12.50 Gift Aid

Jun 9, 2019

Hilary

Well Done John! Sorry this is late! x

£20.00 plus £5.00 Gift Aid

Jun 9, 2019

Pat Ford

Bravo John Clarke!

£50.00

Jun 9, 2019

William Jackson

Well done JC!

£100.00 plus £25.00 Gift Aid

Jun 8, 2019

Smithy

Good effort Clarkie.... enjoy the rubber ring !!

£75.00 plus £18.75 Gift Aid

Jun 6, 2019

David Paterson

Keep pedalling JC! You’ll love it when you get in to the rhythm... all the best David

£20.00 plus £5.00 Gift Aid

Jun 6, 2019

Jim Bush

Good luck young man!

£100.00