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Profile

Jonathan Callow

RideLondon - Surrey 100 miles

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p][b]I’m cycling 100 miles on August 4th this year ![/b][/p][p]I was [i]fortunate[/i] to get a place in the "Prudential RideLondon - Surrey 100" ballot, so I’ve decided to forego “free-cycle-jerseys”, “cheer-teams”, “post ride showers”, “massages” and “after-parties” to raise money for a cause that’s closely affected my family and I.[/p][p]Ten years ago my Dad lost his life to CJD - a devastating disease that's both frightening and confusing for all of those affected - patients, family members and carers alike.[/p][p]So, I’m looking to raise as much money as possible to be split between:[/p][p][br][/p][p][b]The Cure CJD Campaign[/b] [url=http://www.curecjd.org/]www.curecjd.org[/url] (part of UCLH Charity)[/p][p] and[/p][p][b]The CJD Support Network[/b] [url=http://www.cjdsupport.net/]www.cjdsupport.net[/url][/p][p][br][/p][p]Please donate what you can - every penny counts - and think of me on Box-Hill - don't forget, I’m more akin to going down than going up!![/p][p][br][/p][p][i]“CJD is a rare but devastating disease that causes brain damage and for which there is currently no treatment. It is always fatal and most patients sadly die within six weeks of diagnosis.”[/i][/p][p][br][/p][p][br][/p][p][b]Here’s my family’s story - please read and do watch the video below :-) [/b][/p][p]It's hard to believe that 10 years have gone by since my Dad died.[/p][p]He showed signs of an illness in March [url=http://tel:+442009/]2009[/url], but it wasn’t until late May [url=http://tel:+442009/]2009[/url] that he was diagnosed with Sporadic CJD.[/p][p]The rapid decline in his health was devastating to see.[/p][p]Fit, active and healthy he had been “bitten” by the skiing bug (aged 69) with a little encouragement from me and his Grandchildren, on my 40th birthday (some 12 months earlier) and was looking forward to his 2nd season and beyond.[/p][p]We all celebrated his 70th birthday in October [url=http://tel:+442008/]2008[/url] and then my Mum and Dad set sail on a World Cruise.[/p][p]They cut this short in Singapore and returned home, as signs that my Dad wasn’t well had begun, with him initially being unsteady on his feet.[/p][p]Many tests, scans and doctor’s visits later there was still no diagnosis, although his health was deteriorating rapidly in front of our eyes.[/p][p]Finally, his consultant diagnosed Sporadic CJD.[/p][p]Part of his reasoning being that he had looked for everything else and all had come back negative – basically he had to make his diagnosis by process of elimination as there was no test for CJD – that diagnosis was made some 4 weeks before my Dad passed away.[/p][p]I was fortunate in that the company I worked for at the time (Thames River Capital) offered me a huge amount of flexibility to ensure everything was being done for my Dad that could be done, so I was able to be on hand for all of the appointments and consultations that he had and be there to support my Mum.[/p][p]I saw him on a week to week basis and the changes in him were dramatic.[/p][p]From the first signs of his illness to when he died were a little over 3 months and the disease seemed to accelerate in the final few weeks.[/p][p]He went from unbalanced, to not being able to walk, to not being able to talk, and to not being able to eat each time I saw him.[/p][p]He passed away peacefully at home with my Mum and I on June 17th [url=http://tel:+442009/]2009.[/url][/p][p]Always in our thoughts, my children miss him deeply, their Grandpa having been lost to them when they were 9 and 6, just as they were really getting to know him.[/p][p]One of my fondest memories will be skiing from the top of Pleney in Morzine with my two boys and my Dad – a really special moment for all of us...[/p][p][br][/p][p] [/p][vmgvideo class="ql-video" frameborder="0" allowfullscreen="true" src="https://www.youtube.com/embed/GMwaNT0RUrg?showinfo=0&rel=0&iv_load_policy=3"][/vmgvideo][p][br][/p][p][br][/p][p][b]There are four strains of CJD - my Dad had Sporadic:[/b][/p][p][b]Sporadic CJD[/b], of unknown cause and occurs mainly in the middle-aged and elderly.[/p][p][b]Genetic CJD[/b], very rare and due to an inherited genetic defect.[/p][p][b]Iatrogenic CJD[/b], results from accidental transmission by medical or surgical equipment.[/p][p][b]Variant CJD[/b] (vCJD) - a new form of the disease, which has emerged in recent years, linked to a prion disease which affects cattle, bovine spongiform encephalopathy, or BSE. Variant CJD appears to affect younger people.[/p][p] [/p][p][b]Creutzfeldt-Jakob disease (CJD) is a fatal brain condition with about 100 new cases in the UK every year.[/b][/p][p]There is currently no cure but every day scientists and doctors are getting closer to finding a treatment.[/p][p] [/p][p][b]University College London Hospitals’ chief executive Professor Marcel Levi said:[/b][/p][p][i]“Creutzfeldt-Jakob disease (CJD) is a rare and cruel disease which rapidly destroys the brain, affecting memory, thinking, speech, balance, movement and behaviour.[/i][/p][p][i]“There is currently no cure or treatment for CJD. At present, caring for patients with CJD involves trying to use medicines to alleviate symptoms only but sadly, the disease always results in the rapid death of the patient.”[/i][/p][p] [/p][p][b]The CJD Support Network [/b]is the only UK charity providing emotional and practical support for all strains of CJD and for those who are at greater risk of CJD.[/p][p] [/p][p][b]The Cure CJD Campaign[/b] raises funds to support the work of the Medical Research Council Prion Unit at University College London to develop a treatment or cure for CJD, and to increase awareness and understanding of the disease.[/p][p][br][/p][p]Thanks for reading and thanks for supporting.[/p][p][br][/p][p]I should also add that my company, [url=https://www.quilter.com/]Quilter[/url], does a fantastic matching programme, whereby they will match every penny of the first £1,500 donated.[/p]
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Supporters

Aug 5, 2019

John

Good luck!

£10.00 plus £2.50 Gift Aid

Aug 5, 2019

JF

Well done JC TDF next year?

£100.00 plus £25.00 Gift Aid

Aug 4, 2019

Dyners

Well done

£50.00

Aug 3, 2019

Kim O'Leary

Good luck Jonny you're smash Box Hill. Knew your Dad, he was a good guy.

£20.00 plus £5.00 Gift Aid

Aug 3, 2019

Anonymous

Great cause; great man. Good luck with the ride - remember that at the top of every up hill, there's a downhill waiting!

£20.00 plus £5.00 Gift Aid

Aug 3, 2019

Dan

Best of luck Jon!

£20.00 plus £5.00 Gift Aid

Aug 2, 2019

Sheila

Well done Jonathan!

£20.00

Aug 2, 2019

Tom Gregory

Good Luck in this sterling endeavour Jonathan!

£20.00 plus £5.00 Gift Aid

Aug 1, 2019

Alison

Good Luck Jon! I'm sure you'll be amazing, just as long as your cycling is better than your hula hooping skills! :-D Have fun! :-)

£20.00 plus £5.00 Gift Aid

Aug 1, 2019

Ali Samiei

Good luck JC. Great cause as well.

£30.00 plus £7.50 Gift Aid