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Profile

Julia Baker

Ethan Baker's fundraising page

Challenge complete

Fundraising for this challenge has ended so we're no longer accepting donations. Thanks to everyone who supported this challenge.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]          [lt]img style="float: left;" title="Julia1" src="http://lh3.googleusercontent.com/G2sqUk1gsre0HEGA5SSjNKjIdRJrSfeXVkiFQvZECOhXh5J5H4ze6oVGtv9SUw1-90DoHDxsaj2XDErop-BobbPUd0FvThTo80U0ELmttv49aSYPHQMRiuTksbLUSww1UadHe_am8ak0EPlz5c8N5CetVSDiLvf87Kx3RseeTt80iKxeW2RmGYZ5F84_OqfLlMYV5WIIazVBgBLDYVn9FAmfpiW2zZR0phqbIfAQ2SHBnAhIeWuj7GUD-RDY3LQ43hNwqnBLSWyarRBoRRABivmCNLvY8_pHGlEkQKvj-sBQnKbsuZqh3tGf-CA0Xyw4Mm15EBOlncDHMMDViZ-jaojr5c52xUKm-nKIVHEpqLyXDm2UJ841eONt4Ns5DhAHHWDQ2Eo3RtE5GbE2rUc444MN1VAnAyEZu2I8PMfgHNpH7JHzkZJFZLzaA4KH73Hnj1zJDaSyQa8giu0pDkWcrMCL3u_oXzAsZ83BnZa2ab2vhUq5L7693xFH0rYSHRwpmZ4eBjzDnAhqpJKvrykYyCQoMe1-hYTMkw9Zhadvx9h57otbyuQGQWgGUmBpUjHUXLztRxevIk7jzeE9yzDLo4noqhuW2FxiwBU9XXzfvTcPJDzDOoyjrWTZylHiWJTtXuJvEz3D2q7sBcOltO_8U7yU261XKxMBEi0dyQr7HQ=w341-h605-no" alt="Julia1" width="183" height="324" /[gt][/p][p]       [lt]img title="Julia" src="http://lh3.googleusercontent.com/nUjMZtrVlS9iqbVl5mnwyrZ1l4po6tVJhvYmkALBqcS3VW6NWmp_5BhHa8S3AGEGyoV647J_0aS2W4MPnJN3p6YtgK0Td0-LwPmnmkoYIgWpeN7HFJpbW0AndTAmZPpdl3tYpjCN6i0S6HKGklERXsauQ0i7fbqlklQ984lUci8OQGm_PhRGfKvFCGbVntnKpgQj2knxh3cKIT-hL7zfUrBns94TITq3l4YyQYXeW_1B5-AZ0tp3ZnVcMzb1ws3tl0RHsinEc6LUHLK6z7_Ub5kYJnNfv9XVIYX7mh0rT4ti4IvhBPdIm94BS_aZVdDTGEgrf3w_CawDnnM3aj6_hUQJ3CV-BMIy-qYTckJ9-NVNMq32VElFxn62grsqbXOZK-996YyYUHIC3sOkEyJJ35xMtMCK1CUHQym4fpMivUw85i-roygyxX475w58m5Fbt7tbKnZd-KCsfGTRiaZEXV2CXGcb413lx1cAdhjyEF8NdnPpVaP58GEqNRciHfpe4PHN8KvaGwj6zHCw1UutOQHPdKk72MvJarcH1Zcq7PX7UlCgEF-vpiE_ke18ypB1ZzrVEy0tS5dzbmpCqYQmMF4ydLsRAppWUe4Gur8Ux8pmhy8Ad2vBgDkdyYh7aXsxKMJp1WzW8xMVaEZxx3TB8NULmSxZRBnVMqsY_1gdEg=w341-h605-no" alt="Julia1" width="173" height="303" /[gt][/p][p][/p][p]Hi, thanks for visiting my page. Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations. [/p][p]My name is Ethan, I am 9 years old and I have a twin sister called Freya who is a whole 2 minutes older. I am going to walk 3 miles along the canal from Bradford on Avon to help raise money for other special children like me so that their families can get lots of support from SWAN UK (Syndromes Without A Name).[/p][p]By the time I was 5 I had spent the first 8 weeks of my life in NICU as Freya and I were born 10 weeks early, had had two hernia operations, been diagnosed with Global Devleopmental Delay, Epilepsy, Hypotonia and had had lots of tests including MRI's, blood tests, physiotherapy, occupational therapy and lots of support from clever doctors and therapists.[/p][p]Fast forward to March 2017 and I saw a Geneticist (who was the cleverest person I have ever met) who told my Mummy and Daddy that I have an undiagnosed Genetic condition. This means that I have to have lots more tests to find out why I am so special. [/p][p]We were told about this amazing charity called SWAN UK who have helped so much by putting my family in touch with other families who have children who have undiagnosed genetic conditions. I know Mummy and Daddy worry about me as I have lots of medical problems and as we do not know why I have them there are no medicines I can take to help me, but SWAN UK have helped to ease this.[/p][p]SWAN UK cannot give answers to the questions that we have but they do make my parents feel as if they are not alone and they are able to talk with other families for support. SWAN UK even sent me balloons when I was poorly a few weeks ago and had to go to hospital.[/p][p]This amazing charity needs all the help it can get so it can support other families with SWAN children, so I have decided to walk 3 miles along the Avon and Kennett Canal from Bradford on Avon on Sunday 27th August 2017 to raise as much money as possible. I would love to raise £300.00 which means for every 1 mile I walk I would raise £100.00!!!![/p][p]Please please help support me as genetics are an area which need lots of funds to help other children like me, but sadly it can take many years for our families to get answers, and that is if we are lucky.[/p][p]Thank you,[/p][p]Love Ethan xx[/p][p][/p][p][/p][p][/p]

Share Julia's story

Event

Personal Challenge Date

27 Aug 2017

Charity

Supporters

11-Sep-2017

Connor Construction South West Ltd

Well done Ethan on your sponsored walk what a great achievement!!!

£50.00

27-Aug-2017

The Taylors

Great walking Ethan. You should be very proud of yourself. Lots of Love the Taylor's xxx

£50.00

27-Aug-2017

Bratton Bunch

Well done Ethan, we're looking forward to being there with you. x

£20.00 plus £5.00 Gift Aid

27-Aug-2017

Liz Kemp

Good luck Ethan x

£5.00 plus £1.25 Gift Aid

27-Aug-2017

The Creightons

You are amazing, ethan Xx

£5.00

26-Aug-2017

Jeremy and Sharon Gould

Good luck Ethan

£30.00 plus £7.50 Gift Aid

24-Aug-2017

Anonymous

Good luck Ethan , love from Emily xx

£10.00 plus £2.50 Gift Aid

24-Aug-2017

Faye Thomas

Well done Ethan, you're such a lovely boy xx

£10.00 plus £2.50 Gift Aid

24-Aug-2017

Vicci. Will

Good luck Ethan and have fun!

£20.00 plus £5.00 Gift Aid

21-Aug-2017

Alison Adams

Good luck Ethan, we are so proud of you, wish we could be there to support you on your walk, we'll be thinking of you and look forward to seeing lots of photos xx

£20.00 plus £5.00 Gift Aid