Katie Wingar

Katie Wingar

Duchenne dash at home - 300km over 6 weeks

For Elliot's Endeavours Link opens in a new window


Total raised so far£0.00

Total plus Gift Aid: £0.00


Raised offline: £0.00

My story

[p]I want to raise as much awareness and money as I can to give my friend’s beautiful boy Elliot and other boys with DMD the chance of a prolonged life. [/p][p][br][/p][p]Elliot’s story - [/p][p]I've been meaning to write this sooner but I keep putting it off & can never find the right words. I know some of you have already heard, but it's still just as hard to put this out there on social media.... [/p][p][br][/p][p]Our son Elliot has been diagnosed with Duchenne Muscular Dystrophy (DMD). For those who haven't heard of it, don't worry, neither had I & neither had some medical professionals. It's taken years to get Elliot diagnosed (not helped by Covid). [/p][p][br][/p][p]DMD is rare genetic disorder, primarily found in boys, which means Elliot can't produce a protein called dystrophin, vital for muscle growth. Without dystrophin, the muscle cells waste away & die & once they are gone, they are gone. [/p][p][br][/p][p]Typically, boys with DMD lose the ability to walk between the ages of 8-12, they become paralysed from the neck down by their late teens & eventually the muscles around thier lungs & heart cease to function. Life expectancy is early 20's. [/p][p][br][/p][p]DMD is 100% fatal, treatments are ineffective & there is no cure. [/p][p][br][/p][p]Naturally, Will, myself & our family are completely crushed. Although Elliot is no different today than he was 3 months ago, our future as we thought we knew it (the future that we have worked so hard to build) has been ripped from underneath us & a very different, challenging, heartbreaking one stands before us. [/p][p][br][/p][p]Having to watch Elliot's health deteriorate over the years & the thought of having to explain to him why he won't be able to join his friends in activities that we so often take for granted (like playing sports, riding his bike down the park etc) is no doubt going to be the hardest conversation il ever have in my life & even now, just the thought of it brings me to tears. [/p][p][br][/p][p]But in amongst this darkness, there is a glimmer of hope. Around the world there is a global army of scientists trying to find suitable treatments & even a cure for Duchenne. [/p][p][br][/p][p]Will & I & our families will be devoting our lives to raising awareness & fundraising for Duchenne. The charity we have chosen is Duchenne UK, a charity founded by 2 mothers of Duchenne boys who have already made huge waves in the last ten years trying to get clinical trials into approved treatment for the NHS. Clinical trials can take anything between 15-20 years to get approved. Time myself & other parents just don't have. Duchenne UK are working hard to make clinical trials available for all Duchenne patients to participate in should they wish. All the money raised for Duchenne UK goes back into clinical trials. [/p][p][br][/p][p]This is where I ask for your help. Even if we haven't kept in touch as much as we could have over the years, I would really appreciate your support now more than ever.[/p][p]I've ceated two pages for Elliot (Facebook & Instagram). Here, I will be sharing Elliots journey, promoting our fundraising activities & sharing ways you can support us. [/p][p][br][/p][p]The best things about this cause, is that Will & I get to choose what clinical trials the money we raise goes into, which means you actually get to see where your money goes & see first hand how you are changing a little boys life. [/p][p][br][/p][p]Its not something that comes easy to me, putting our lives out there & sharing something so personal & raw, but this disease leaves you feeling completely powerless at a time when all you want to do as a parent is protect your child from such a cruel fate. [/p][p][br][/p][p][br][/p]

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Jul 1, 2021

Catherine Mcgrath

Well done hun what a lovely thing to do for your friend I do hope they find the help for their beautiful baby boy xx


plus £2.50 Gift Aid

Jun 29, 2021

Jessica dower

Keep it up !!! Good luck! Xx


plus £3.75 Gift Aid

Jun 29, 2021

The Pooles

Well done Katie, wishing Elliot and his family all the hope in the world that through these donations science can help advance the treatment of DMD. Xxx

Jun 15, 2021

Han and the tribe x

So proud of your efforts for this amazing cause 💙 xxx


Jun 13, 2021


well done keep going for such a good cause

Jun 2, 2021

Andria Sweeting

You are doing brilliant Katie. Xx


plus £2.50 Gift Aid

Jun 2, 2021


Well done keep up the good work


plus £2.50 Gift Aid

May 29, 2021

Aunty Elisabeth

Good luck with your sponsorship and well done for all your efforts for such a worthy cause.


May 28, 2021

Kylie Cornelius

Well done Katie. You’ll smash it. Kylie, Kev & the boys xx


plus £7.50 Gift Aid

May 26, 2021


Best of luck Katie on your venture to help a good friend and very worthy cause. You’re amazing!


plus £6.25 Gift Aid

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