Fundraising for this challenge has ended so we're no longer accepting donations. Thanks to everyone who supported this challenge.
Total raised so far£0.00
Total plus Gift Aid: £0.00
Raised offline: £0.00
[p]I decided to join in with a very brave family who are raising money for research into Rhabdomyosarcoma Research with a special named fund for their beautiful daughter, Ruby. [/p][p][br][/p][p]Ruby was diagnosed with stage IV Alveolar rhabdomyosarcoma in September 2017. She was 4 years old and had just started school.[/p][p]Scans revealed metastases (spread of the disease) in the muscle in her spine, her pelvic area and lungs. Within weeks she couldn’t walk or stand due to the tumour in her back impeding her spinal cord. She started intensive chemotherapy straight away. The effect was almost immediate - the tumours started to melt away and Ruby started to get sensation back in her legs. She gradually learned to walk again.[/p][p]She had 9 cycles of chemotherapy and 6 weeks of radiotherapy she was in remission. She continued with maintenance treatment for 6 months and had stable scans in November 2018. In February 2019 she complained of a sore back and scans revealed relapse with disease progression in both legs, her spine and pelvic area. The disease has returned in the areas treated with intense radiotherapy. Her family are currently waiting to find out what treatment she will receive now. It will be a case of managing the disease and prolonging her life for as long as possible; the prognosis is extremely poor. [/p][p]Rhabdomyosarcoma is a very rare muscle cancer which mainly affects children. The alveolar type that Ruby has is very aggressive. New treatments are urgently needed both to cure this horrible disease and also to reduce the side effects or treatment, both acute and long term. Her family have set up this fund to contribute what they can, along with other CCLG Special Named Funds, to research into new treatments. They don’t want any more families to have to go through what they're going through.[/p][p]Research into childhood cancers is SEVERELY underfunded, as we discovered after our own little boy was diagnosed in January 2018. Only about 1% of funds raised by big UK cancer research charities in the UK goes towards childhood-specific cabcer research. Most childhood cabcer drugs were developed in the 60s and 70s and haven't changed much since then. This is why we're raising money to help families like Ruby's, to try and put an end to the heartbreak that they currently face. [/p]