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Kirsty Brown

My 300 miles walk for Transverse Myelitis

Challenge complete

Fundraising for this challenge has ended so we're no longer accepting donations. Thanks to everyone who supported this challenge.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]Why am I doing this well here's my story.[/p][p]Friday 21st September 1990 was the day I collapsed at school and my life changed. [/p][p]What started as pins and needles during a school assembly went on to become numbness and then complete loss of feeling from my waist day resulting in me collapsing.[/p][p]I was rushed to Medway hospital where tests were carried out, however they couldn't give me a diagnosis. [/p][p]I was transferred to All Saints Hospital Chatham in the evening and all I remember is that I was put in a bed that was far too small for me but hey I couldn't feel anything from my waist down so it didn't matter. [/p][p]I was due to have a lumbar puncture under local anaesthetic so my parents brought me a brown soft toy owl which I fell in love with (I was only 12). I can't remember if the lumbar puncture was attempted on the Saturday or Sunday but I do remember my Mum crying as I was screaming out in pain because they couldn't get fluid just blood. [/p][p]As the lumbar puncture wasn't a success it was decided I would be transferred to Great Ormold Street Hospital, we went that evening and the following day I was put under sedation to have another lumbar puncture and further tests were carried out. The results came back and I was diagnosed as having Transverse Myelitis. It was 50/50 if I would ever walk again.[/p][p]What was the cause of my TM well a simple infection that turned into a virus which attacked my spinal cord, resulting in me being paralysed from my waist down. [/p][p]There was nothing more that Great Ormold Street could do for me that All Saints couldn't do so I was transferred back to All Saints to commence intense physiotherapy. [/p][p]Memories from that time were 1, being one of the oldest on the ward I was given the biggest cubicle, 2, being told off by the nurses as I would wheel myself to the toilet and transfer myself from wheelchair to toilet (even then I was stubborn and independent), 3, My class came to visit me and we were allowed off the ward so we went to the restaurant, a group of 12 years old in charge of me in a wheelchair on slopes.... So many strange memories from such a difficult time [/p][p]After 8 weeks with alot of determination, frustration, tears and sheer hard work I was slowly learning to walk again with the aid of a zimmer frame.[/p][p]I was discharged from being an inpatient to an outpatient and had to attend physiotherapy every other day then weekly. [/p][p]I returned to school in the January on 1991.[/p][p]To date I still can't run/jog, I struggle walking up flights of stairs, walking for long periods of time (which is why this is a challenge for me), my sense of gravity isn't great as I fall/trip easily, my legs have twitches and spasms which is rather annoying. I don't actually know when I cut myself and I have delayed reaction if I step into a bath and the water is too hot. I'm also left with not having 100% of feeling from my waist down but I'm walking and that's one of my biggest achievement in my life.[/p][p]Why is 300 the number I have chosen well in the UK there are only 300 people living with Transverse Myelitis, so understandably there isn't much support available out there. [/p][p]So I'm going to walk 1 mile for every person who has this condition as not everyone can walk or even lift their arms (I see myself as being a lucky one). [/p][p]During my walk I hope to raise £300 as this will pay for one person with TM to see a neuro-physio specialist for two hours to gain valuable knowledge in dealing with their condition, which myself or my family didn't have 27 years ago.[/p][p]If you would like to follow my daily updates here is my Facebook page https://www.facebook.com/groups/1440617162687643/[/p][p]Thanks for taking the time to visit my Virgin Money Giving page.[/p]
My 300 miles walk for Transverse Myelitis image 1
My 300 miles walk for Transverse Myelitis image 2

Share Kirsty's story

Event

Personal Challenge Date

01 Apr 2018

Supporters

28-May-2018

Julie x

Proud of you xx

£5.00 plus £1.25 Gift Aid

30-Apr-2018

Bethany

From Bethanys Cake Sale

£40.00

30-Apr-2018

Carole Ashman

£10.00

06-Apr-2018

Anonymous

£15.00

05-Apr-2018

DD

Great cause, great job well done.

£10.00 plus £2.50 Gift Aid

05-Apr-2018

Olly Cliftonville

£2.50 plus £0.63 Gift Aid

04-Apr-2018

Megan - Customer Relations

Good Luck!xxx

£10.00 plus £2.50 Gift Aid

03-Apr-2018

Anonymous

Good luck !!

£40.00 plus £10.00 Gift Aid

01-Apr-2018

Ann

£10.00 plus £2.50 Gift Aid

01-Apr-2018

Nicky Smith

Good luck Kirsty xx

£10.00 plus £2.50 Gift Aid