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Laura Turner

Laura Turner

Nerve Tumours UK Virtual 26.5 mile Run

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p][b][u]The reason behind this - Elliot[/u][/b][/p][p]If I asked you have you heard of tumours, what would your answer be? If I then asked you have you heard of Neurofibromatosis, what would your answer be? Before Elliot was born I would have answered yes to the first question and definitely not to the last question. However, they are closely linked. Approximately 1 in every 2,500/3000 people is born with NF1. [b]In[/b] [b]the UK[/b], [b]every day a child[/b] [b]is[/b] [b]born[/b] [b]with[/b] [b]NF1[/b].[/p][p]Our son Elliot is three years old and was diagnosed with Neurofibromatosis Type 1 (NF1) in the summer of 2018 when he was just one year old. It was a huge shock. We had to quickly learn about something we had never heard of and were overwhelmed with all the different complications that can arise such as brain tumours, increased risk to certain cancers, skeletal problems, epilepsy, cardiovascular problems and vision problems to name just a few! Every day he is at risk of developing a complication of NF1 and the unknown was, and still is, rather intimidating. [/p][p]This is where Nerve Tumours UK comes in. I read through their website, read other people’s stories and got in touch with one of their NF nurses. She helped me understand Elliot’s condition more and I was able to talk through my concerns such as Elliot’s second condition JXG (Juvenille Xanthogranuloma) which is seen in around 1% of young children with NF1. She was so knowledgeable and I can’t describe the difference it made being able to pick up the phone and just talk and get advice. And the charity does so so much more than just that which you can see yourself by visiting: [url=https://nervetumours.org.uk/]https://nervetumours.org.uk/[/url][/p][p]One of the hardest parts of Neurofibromatosis is the unpredictability. We don’t know what the future holds for Elliot in terms of his condition and what we might have to face. [/p][p][b][u]What are nerve tumours? And what is Neurofibromatosis?[/u][/b][/p][p]Neurofibromatosis loosely translates to mean “nerve tumour increase”. [/p][p]There are two main types of Neurofibromatosis: NF1 and NF2. There are also two rarer variants: Schwannomatosis & Legius Syndrome. All of the conditions cause nerve tumours, and all involve health complications.[/p][p]These tumours are usually non-cancerous (benign). They can be internal, or external, they can be big or small. Sometimes they cause no harm, other times they can provoke complications. [/p][p]As in Elliot’s case, half of nerve tumours cases recorded have no previous family history of the condition. People who are born with nerve tumours with no family history are considered to have “spontaneous gene mutation”. Putting it simply, nerve tumours result from a “spelling mistake” in a person's genetic make-up. [/p][p][b][u]The Challenge You Are Supporting[/u][/b][/p][p]I only started running during the summer with the Couch to 5K and I have decided to give myself a new challenge for every month of 2021. I couldn’t think of a better way to start than with raising awareness for Neurofibromatosis and supporting Nerve Tumours UK by running a total distance of 26.5 miles in January. I will upload every run via Strava so that you can see my progress and when I have completed the challenge which has to be by 31st January 2021.[/p][p]I’m not quite climbing Mount Everest just yet but this is still a significant challenge for me as those who are close to me will know I couldn’t even run half a mile before last summer! So please, no matter how small, could I ask you donate to this fundraising event for Elliot and the other 26,499 people in the UK with Neurofibromatosis to help find a cure, aid research and support this amazing charity. Every donation that is made makes a difference and you will be helping to support a very important cause. [/p][p]Thank you,[/p][p]Laura, Martin, Rowan and Elliot x[/p][p][br][/p]
Nerve Tumours UK Virtual 26.5 mile Run image 1

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Event

Personal Challenge Date

31 Jan 2021

Supporters


Feb 27, 2021

Jan Kapcia

£15.00

plus £3.75 Gift Aid


Feb 27, 2021

Brendan Smith BGS

£130.00


Feb 21, 2021

Anonymous

Nominated by James Shipley, here’s my 3 buy ins.

£30.00

plus £7.50 Gift Aid


Feb 21, 2021

Mitch

£20.00

plus £5.00 Gift Aid


Feb 21, 2021

Davers

£10.00

plus £2.50 Gift Aid


Feb 21, 2021

Marc

£10.00

plus £2.50 Gift Aid


Feb 21, 2021

Steve

£20.00

plus £5.00 Gift Aid


Feb 21, 2021

Kybe

£30.00

plus £7.50 Gift Aid


Feb 21, 2021

Shipley

Lufbra poker night. Great suggestion by Brendan to donate the winnings to charity 😃

£10.00

plus £2.50 Gift Aid


Feb 16, 2021

Anonymous

£40.00

plus £10.00 Gift Aid

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