Duchenne Dash AT HOME

[p]I am trying to raise money for my 6 year old nephew!Henry Saul.[/p][p]when we was told by my brother that they had found out of the devastating and heartbreaking news.Henry was 3 years old when they found out he was diagnosed with (DMD).[/p][p]Before that no one had a clue!!,he lived a Normal life!and thankfully at the moment he still does although he has to wear splints at night and take steroids everyday and has physio which he never complains about (bless his soul)[/p][p]Not only is Henry my nephew who I love dearly he is also my son (Riley’s) best friend and they are more like brothers!!.We are all so close ❤?[/p][p]He is the most sweetest loveliest little boy and I just can’t believe this is happening to us all😢[/p][p]My brother(Ryan saul),my sister in law(Jayne saul, my nephew (Henry) and niece (darcey) are the most amazing, caring and happy family.[/p][p] we really need ur help even just a little bit of money would help and make such a difference ❤?🙏and we would appreciate it so so much ❤?[/p][p]Two families a week in the UK are told that their child has Duchenne Muscular Dystrophy (DMD), a devastating muscle wasting disease that mainly affects boys.[/p][p] DMD is a desperately cruel disease. It's the most common genetic killer of children worldwide. Children will be totally paralysed by their teens and many won't live beyond their 20s. [/p][p]There is no treatment or cure. But thanks to recent breakthroughs, and with your help, we believe we can save them.[/p][p]Duchenne UK are an ambitious and highly focused charity, investing millions of pounds in research right now to bring treatments and a cure and to help this generation.[/p][p]Please help us to END DUCHENNE.[/p][p]Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to Duchenne UK. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations.lisa,lloyd,Riley and harmony xxxx[/p]