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Lloyd Pool

London Marathon 2020

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p] You’ve probably never heard of the charity ECHO (Evelina Children’s Heart Organisation), and neither had we until our world was turned upside down in 2017 when we found out our unborn baby had a severe heart condition known as Hypoplastic Right Heart Syndrome (HRHS). [/p][p] HRHS is a congenital heart defect in which the right atrium and right ventricle are underdeveloped or have not formed. When these are too small or do not function properly the right side of the heart cannot send enough blood to the lungs, resulting in an inadequate supply of oxygenated blood being circulated to the body. After meeting with professors and experts in that field, as well as a counsellor from ECHO, we made the heartbreaking decision after sleepless nights, tears and all the emotions you can imagine not to continue with the pregnancy.[/p][p] ECHO supports children and young people with heart conditions and their families, who have been treated by Evelina London Children’s Hospital networks. They provide support from the moment of diagnosis, throughout any treatment and care pathway or bereavement. Had we continued with our pregnancy the surgeons at the Evelina Children's Hospital advised that they would not have a definitive plan of action in place until the baby had been born as the condition was so severe and rare. All they were able to tell us for certain was that in the first few hours of life our baby would have required complicated open heart surgery, followed by two more serious surgeries before the age of 3. Ultimately resulting in a heart transplant between the age of 15 and 30, if they were healthy enough and a donor could be found.[/p][p] We know 100% that had we continued with the pregnancy we would have needed all the support from ECHO that they offer. Not just for Nicole and I but also for Olly and Jack, as quite often people forget that siblings are affected too.[/p][p] At the time we didn’t feel like we could talk about our experience, it was too raw. However, we have decided now is the time to tell our story and let people know about this amazing charity. [/p][p][br][/p][p][u]What your donation could go towards?[/u][/p][p][b]£12 - [/b] Could provide a comfort pack for families arriving at Evelina London by ambulance, empty handed having had zero time to pack.[/p][p][b]£25 - [/b]Could pay for specialist play equipment for children in hospital.[/p][p][b]£45 - [/b]Contributes to an ECHO gathering, providing practical information and support to families in their community.[/p][p][b]£80 - [/b]Funds our Cardiac Support Worker to provide 3 visits to support families in hospital.[/p][p][b]£500 - [/b]Enables us to host an annual gathering for bereaved families to come together in remembrance of their beloved children.[/p][p][b]£950 - [/b]Provides a specialist cardiac antenatal class for expectant couples - proving they are not alone and preparing them for the journey ahead.[/p][p][br][/p][p]If you would like to know more about ECHO and the fantastic work that they do, please visit their website [url=http://www.echo-uk.org/]www.echo-uk.org[/url] [/p][p]Thank you for taking the time to read my page.[/p][p][br][/p][p] [/p]

Share Lloyd's story


Oct 10, 2019

Dawn and Ian

Wishing you a great run Lloyd x

£10.00 plus £2.50 Gift Aid

Oct 9, 2019

Kat and Ash

Good luck!

£75.00 plus £18.75 Gift Aid

Oct 9, 2019

Gem mike and Izzy

Try getting some training in this time ;p love ya

£50.00 plus £12.50 Gift Aid

Jul 23, 2019