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Lorraine Williams

Running, dressed like a butterfly

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]25th May is International Thyroid Awareness Day.[/p][p]I was diagnosed with autoimmune hypothyroidism, Hashimoto's Disease, in 2009. [/p][p]Ten+ years later, I now run a charity for people affected by thyroid disease, The Thyroid Trust. [/p][p]I had a truly horrific time with my illness for around 18 months and it's continued to affect me, to a lesser extent, ever since. I had dementia like symptoms, which was the scariest thing I have ever experienced, I also had crippling fatigue (which I sometimes still experience), hair loss, weird rashes, facial swelling and other symptoms, too many to list. I had to give up my job. If it wasn't for my lovely husband, I dread to think what would have become of me, seriously. [/p][p]It is a chronic condition which can be very debilitating. It runs in my family but I knew next to nothing about it until I was diagnosed, because thyroid disease is very seldom talked about. [/p][p]Over the years, through organising support and information events, awareness raising and advocacy initiatives, I've met enough fellow patients to realise that there are a lot of people with thyroid conditions who are still really suffering, either because they do not have the information and support they need to be able to manage their condition effectively, or in some cases because treatment options that could help them are being withheld due to unclear guidelines and poor cost management of old generic medicines. Unfortunately the NHS simply has often not prioritised these patients' health. The Thyroid Trust has helped take a leading role in addressing this unfair situation and we are making progress. [/p][p]Thyroid disease can ruin lives. It should be much higher profile, standards of care and access to treatment options should be higher and more consistent across the UK. There are a ton of issues, don't let me bore you with it. I don't want to be a thyroid bore. [/p][p]But basically, The Thyroid Trust is still a very new and small charity and if it doesn't raise more money over the next few months it might not be able to survive, which would be awful. [/p][p]So, thinking I might raise some smiles during these dark lockdown days, I will use my permitted exercise hour, from midday to 1pm on 25th May, to dress up extremely foolishly and brightly, to the best of my ability, as a 50 something woman with thyroid disease. I will emulate a butterfly, because the thyroid is a butterfly shaped gland and that is the best hook we could come up with for raising awareness of thyroid diasease, and I will run through the streets of my home town, no doubt attracting some funny looks and hopefully also raising a few quids. [/p][p]I'm going to do a route round Broadstairs that spells out THYROID: Thanet Road, Harbour Street, York Gate, Rectory Road, Oscar Road, (the usual location of the iconic Broadstairs) Inflatable Giraffe (although it's not there at the moment), Dumpton Gap Beach. [/p][p]Victoria Stone and Sam Stokes are also running a 10K round the Isle, to benefit the charity on the same day, they will be adding the funds they raise to this page so our total raised will be combined. Thank you Victoria and Sam! [/p][p][br][/p][p] [/p]
Running, dressed like a butterfly image 1
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Supporters

Jun 6, 2020

Val

Brilliant idea and brilliant effort. Well done!!

£25.00 plus £6.25 Gift Aid

Jun 2, 2020

Charmaine Beneyto

Fantastic work Lorraine! I hope you can keep going with the trust as you are clearly making a real difference. With love Charmaine and Mark xxx

£30.00 plus £7.50 Gift Aid

Jun 2, 2020

Anonymous

Can we round it up? Really enjoyed the pictures!

£15.00 plus £3.75 Gift Aid

Jun 1, 2020

Garthine Walker

I’m a little late to the party, but well done you beautiful pink butterfly! Love from Garthine xxx

£10.00 plus £2.50 Gift Aid

May 31, 2020

Kirsten

Nice one Butterfly. Your mate in Tunbridge Wells kx

£15.00

May 31, 2020

Victoria

Well done all, especially Sam. From Michael Lambeth and the boys from house proud building services, Alan,Dave, Martin, George and Finley.

£60.00 plus £15.00 Gift Aid

May 30, 2020

Victoria

Well done eveyone who took part - Victoria Stone and Sam Stokes

£40.00 plus £10.00 Gift Aid

May 28, 2020

Patsy

Well done!! Lots of L💛ve Patsy xx

£15.00

May 28, 2020

Chloe Constantine

Well done Lorraine, smashed it in tire Lorraine Style 💗

£20.00

May 27, 2020

Colin Snoad

Hi Lorraine! Great running, well done! Sorry we didn't see you out, but love the pictures, you're a natural butterfly :)

£10.00 plus £2.50 Gift Aid