Lorraine Williams

Lorraine Williams

Butterfly Run in Broadstairs

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]25 - 31 May is International Thyroid Awareness Week.[/p][p]I was diagnosed with autoimmune hypothyroidism, Hashimoto's Disease, in 2009.[/p][p]Ten+ years later, I now run a charity for people affected by thyroid disease, The Thyroid Trust. We only completed our registration with the charity commission in 2019, so we're still very new and small, but we are doing a lot to make things better for thyroid patients and we are determined to do much more as we grow! [/p][p]I had a truly horrific time with my illness for around 18 months and it's continued to affect me, to a lesser extent, ever since. I had dementia like symptoms, which was the scariest thing I have ever experienced, I also had crippling fatigue (which I sometimes still experience), hair loss, weird rashes, facial swelling and other symptoms, too many to list. I had to give up my job. If it wasn't for my lovely husband, I dread to think what would have become of me, seriously.[/p][p]It is a chronic condition which can be very debilitating. It runs in my family but I knew next to nothing about it until I was diagnosed, because thyroid disease is very seldom talked about.[/p][p]Over the years, through organising support and information events, awareness raising and advocacy initiatives, I've met enough fellow patients to realise that there are a lot of people with thyroid conditions who are still really suffering, either because they do not have the information and support they need to be able to manage their condition effectively, or in some cases because treatment options that could help them are being withheld due to unclear guidelines and poor cost management of old generic medicines. Unfortunately the NHS simply has often not prioritised these patients' health. The Thyroid Trust has helped take a leading role in addressing this unfair situation and we have been making some progress though the pandemic has obviously not helped us push our cause to the fore. [/p][p]Thyroid disease can ruin lives. It should be much higher profile, standards of care and access to treatment options should be higher and more consistent across the UK. There are a ton of issues, don't let me bore you with it. I don't want to be a thyroid bore. (Oh but here I am again, repeating myself, well it's important so I will go on about it a bit I'm afraid). [/p][p]But basically, The Thyroid Trust is still a very new and small charity and if it doesn't raise more money this year it might not be able to survive, which would be awful.[/p][p]So for the second year running I am going to dress up extremely foolishly and brightly, to the best of my ability, as a 50 something woman with thyroid disease. I will emulate a butterfly, because the thyroid is a butterfly shaped gland and that is the best hook we could come up with for raising awareness of thyroid disease, and I will run (or walk) through the streets of my home town, no doubt attracting some funny looks and hopefully also raising a few quids.[/p][p]I'm going to do a route round Broadstairs that spells out THYROID: Thanet Road, Harbour Street, York Gate, Rectory Road, Oscar Road, (the usual location of the iconic Broadstairs) Inflatable Giraffe (although it's not there at the moment), Dumpton Gap Beach.[/p][p]This year I'll be running (or more likely walking as I've not been that well) from midday to 1pm on 30th May and I'm very happy that I won't be doing it alone this time. Providing government guidance on the day will allow it, I'll be joined by a few thyroid friends - who may share this page or may set up their own. [/p][p]Our theme for World Thyroid Day and International Thyroid Awareness Day is Thyroid Champions - please support us, because we need all the Champions we can get! Donations hugely welcomed and appreciated, you can also support us by changing your Facebook profile page to the Thyroid Trust Thyroid Champions frame if you want to help raise more awareness. [/p][p]If you don't have a thyroid condition but know someone who does, they might really like to know that they are not alone, so please tell them and give them a hug. It could mean the world to them, as your support does to me. [/p][p][br][/p]
Butterfly Run in Broadstairs image 1
Butterfly Run in Broadstairs image 2
Butterfly Run in Broadstairs image 3
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Butterfly Run in Broadstairs image 5
Butterfly Run in Broadstairs image 6

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Event

Personal Challenge Date

30 May 2021

Supporters


Jun 15, 2021

Stephen Hey

Well done Lorraine!

£10.00

plus £2.50 Gift Aid


Jun 11, 2021

Jane

Well done Lorraine!

£10.00

plus £2.50 Gift Aid


Jun 9, 2021

Ben Lopez

Great effort once again! well done Lorraine


Jun 8, 2021

Nick

£11.00


Jun 7, 2021

Kiki Case

£30.00

plus £7.50 Gift Aid


Jun 6, 2021

Lord Philip Hunt

Best wishes and Good Luck

£50.00

plus £12.50 Gift Aid


Jun 5, 2021

Simon Ferguson

Great stuff Lorraine. Well done

£50.00


Jun 5, 2021

Kenny Jenkins

£20.00


Jun 4, 2021

Jackie Colwell

Well done Lorraine and thanks for all the info and everything you do for The Thyroid Trust 🙌 Jackie Colwell

£20.00

plus £5.00 Gift Aid


Jun 4, 2021

sam pescott-frost

Well done to my favourite butterfly xx

£50.00

plus £12.50 Gift Aid

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