Lucy Horler

Lucy Horler

Lucy Horler's 10k for Joel Prince Starlight

JOEL PRINCE STARLIGHT FUND Link opens in a new window

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]I am running the Great Bristol 10k for The Children's Cancer and Leukaemia Group, Joel Prince Starlight fund.[/p][p]I had the privilege of getting to know Joel Prince before he was diagnosed with a rare cancer, Atypical Teratoid/Rhaboid Tumor at the age of 2. He was a happy and caring child and I was deeply moved by his incredible bravery during his fight against this terrible disease. Sadly Joel passed away on 25th January last year. Please give what you can to try and prevent other children and their families going through this ordeal.[/p][p]His parents words[/p][p][span=color: #333333; font-family: helvetica, arial, sans-serif; font-size: 12px; -webkit-text-size-adjust: auto;]Our gorgeous 2 year old son was diagnosed with an Atypical Teratoid/ Rhabdoid Tumour, AT/RT, on his spine on 10th July 2014. This resulted in compression on his spinal cord causing loss of sensation and movement from his waist down. After an amazing life-saving operation, the tumour was removed. The Rhabdoid tumour is a very rare, fast-growing, aggressive, malignant tumour and so treatment needed to be started straight away. Joel needed to have 9 sessions of intensive chemotherapy, one every 2 weeks, and 6 weeks of radiotherapy under general anaesthetic, Monday to Friday. On the eighth cycle of [lt]span style="color: #333333; font-family: helvetica, arial, sans-serif; font-size: 12px; line-height: 16px;"[gt]chemotherapy Joel developed a serious lung condition and was rushed to intensive care where he was put on a ventilator for nearly two weeks. He slowly recovered and finally came home on December 13th following a clear result from the MRI scan. We all had a wonderful Christmas and Joel was doing really well. He had worked so hard to regain some of the movement in his lower body and had started to crawl again, as well as standing and taking a few steps. Then in mid-January Joel started to deteriorate rapidly and on January 23rd Joel had to have an emergency MRI scan which revealed 2 more tumours had grown on his spine. Sadly, Joel had lost his battle and passed away on Sunday 25th January at home.[/span][lt]br style="color: #333333; font-family: helvetica, arial, sans-serif; font-size: 12px; line-height: 16px;" /[gt][lt]br style="color: #333333; font-family: helvetica, arial, sans-serif; font-size: 12px; line-height: 16px;" /[gt][span=color: #333333; font-family: helvetica, arial, sans-serif; font-size: 12px; line-height: 16px;]Joel brought so much brightness and joy to us all in his short life. A child, unlike any other, whose smile would light up the room and melt the heart of anyone who saw him. He was intelligent beyond his years, had an intensely caring nature and whose last wish was for those he loved to "Be Happy". [/span][lt]br style="color: #333333; font-family: helvetica, arial, sans-serif; font-size: 12px; line-height: 16px;" /[gt][lt]br style="color: #333333; font-family: helvetica, arial, sans-serif; font-size: 12px; line-height: 16px;" /[gt][span=color: #333333; font-family: helvetica, arial, sans-serif; font-size: 12px; line-height: 16px;]One day a child will recover from this awful disease, sadly for us, that was not our Joel. We have decided to try to bring some hope to those children and families who find themselves going through the same ordeal. The Joel Prince Starlight Fund was set up via Children's Cancer and Leukaemia Group (Registered Charity number 286669). CCLG will hold all donations and ring-fence the money for the ‘Joel Prince Starlight Fund’ of which 100% of the donations + Gift Aid made to Joel's fund will be directed to AT/RT research and clinical trials. These are desperately needed and this costs lots, we need over a million![/span][lt]/span[gt][/p][p]Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations.[/p]

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Supporters


Jul 14, 2016

Lucy Spragge

Well done Lucy! Great cause.

£20.00


Jun 7, 2016

Fergus

Great run for a great cause

£20.00

plus £5.00 Gift Aid


Jun 2, 2016

Anonymous

Good running for a good cause.

£10.00

plus £2.50 Gift Aid


May 16, 2016

Anonymous

Well done Lucy x

£5.00

plus £1.25 Gift Aid


May 15, 2016

Anonymous

£20.00

plus £5.00 Gift Aid


May 15, 2016

The Bevans

Good luck Lucy x

£20.00

plus £5.00 Gift Aid


May 15, 2016

Kate

Good luck Lucy, you're amazing!

£10.00

plus £2.50 Gift Aid


May 15, 2016

Anonymous

Good Luck Lucy!! xx

£20.00


May 14, 2016

Caroline Tranter

Good Luck Lucy, love Caroline, Matt and Emily

£5.00

plus £1.25 Gift Aid


May 14, 2016

Anonymous

Good luck mi babber!!!! M A F A x

£20.00

plus £5.00 Gift Aid

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