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Wendy Horrobin 25km Norrie Disease Fundraiser

12 team members

Challenge complete

Fundraising for this challenge has ended so we're no longer accepting donations. Thanks to everyone who supported this challenge.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Team story

[p][b]Norrie Disease Foundation 25km Fundraiser! [/b][/p][p]On 21st September Wendy Horrobin will be doing a sponsored 25km walk along the Thames Path with her wonderful sister Annie and friends, Andrea, Esther, Jane, Kate, Kathryn, Louise, NK, Natasha, Penny, Rachel and Sandrine to raise money for the Norrie Disease Foundation! With an average age of around 45 years (some just slightly older!) it's going to be quite a challenge![/p][p]In 2008 Wendy's son Josh was diagnosed with Norrie disease which has caused him to be blind. Norrie disease is a rare genetic condition causing blindness/severe visual impairment from birth. In addition to this most affected individuals suffer from progressive hearing loss often starting in early childhood.[/p][p]The Norrie Disease Foundation (NDF) is a UK based charity who promote pioneering research into Norrie disease and provide vital support to families.[/p][p]The NDF is on a mission to raise £62,500 by February 2020. This money will go towards Sparks and Great Ormond St Hospital Children’s Charity national funding call with the hope to treat the Norrie disease progressive hearing loss.[/p][p]Treating or slowing down the progressive hearing loss could mean the difference between independence as an adult, or not. Sound is incredibly important to those with a visual impairment, so developing an additional sensory loss in late childhood/early adulthood is particularly hard for the individual and can be very isolating. There is no cure for Norrie disease but being able to save the hearing would be life-changing for Josh and other boys like him in the Norrie community.[/p][p]£62,500 for a small, fledgling charity, solely run by volunteers is very ambitious but it gives the Norrie community hope.[/p][p] Anything you can spare to help would make an enormous, life changing difference to the Norrie community! [/p][p]Thank you so much![/p][p]Wendy, Annie, Andrea, Esther, Jane, Kate, Kathryn, Louise, NK, Natasha, Penny, Rachel and Sandrine[/p][p][br][/p]
Wendy Horrobin 25km Norrie Disease Fundraiser image 1
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Supporters

Jan 15, 2020

Grandma Jean

Christmas postage

£100.00 plus £25.00 Gift Aid

Nov 11, 2019

Grandma Jean

Sunflower

£70.00 plus £17.50 Gift Aid

Oct 17, 2019

Anonymous

Well done, brilliant day. x

£218.00 plus £54.50 Gift Aid

Oct 10, 2019

G and T

£50.00 plus £12.50 Gift Aid

Oct 7, 2019

Bill

From Members of Burgess Hill Rotary Club

£35.00

Oct 6, 2019

The Bearmans

Good luck with the walk and the fundraising!

£10.00 plus £2.50 Gift Aid

Oct 3, 2019

Rachel

Great walking with you all! xx

£50.00 plus £12.50 Gift Aid

Oct 1, 2019

Jenefer

£25.00 plus £6.25 Gift Aid

Oct 1, 2019

Anonymous

£5.00

Oct 1, 2019

Naomi Dale

Brilliant effort from Wendy and the whole team! Hope you didn't get too many blisters. And to a wonderful cause to support funding for research in progressive hearing loss in Norrie's.

£30.00 plus £7.50 Gift Aid

Wendy Horrobin

Wendy Horrobin

Andrea Hilton

Andrea Hilton

Rachel McDowell

Rachel McDowell

Angela East

Angela East

Anne H

Anne H

Jane Carn

Jane Carn

Penny Boulyaphol

Penny Boulyaphol

Natasha McMichael

Natasha McMichael

Narguess Kh

Narguess Kh

Sandrine Marionvalle-Jaines

Sandrine Marionvalle-Jaines

Kathryn Stevenson

Kathryn Stevenson

kate irwin

kate irwin